I was diognesed with secondary chronic fatigue with a lifetime of sleep deprivation at the beginning of this year.
After a short consultation I came away quite tearful. the consultant said that I would slowly get better as my sleep gets sorted and it may take several years!
I had started taking Oxycodone for restless legs a year prior to that. Oxycodone interferes with sleep pattern so my sleep is only a little better than before I was prescribed it. The blessing is that I can actually lie down or sit whenever I want. A miracle and a godsend and I was do desperate, I am pretty sure it saved my life
Since that consultation I have started to get pain in my legs and often lie with my legs in the air to try and alleviate. Dosnt make much difference though a little.
The consultand asked whether I had pain at the time. I said no. I have sort of downplayed the pain since it started around 5/6 months ago (since the consultation) thinking it may be because I am not getting excercise and just padding around my flat.
However when I have the occasional blow out, ie stay out of bed and have a moment where I want to move the sofa say and have s rearrange of furniture. As I did yesterday. The pain was worse than usual, I suspect because I overdid things
Which got me thinking that perhaps I should get a second opinion, maybe I have ME.
I dont know but I am thinking that I should get a second opinion. Unfortunately I didnt get a good feeling from the NHS immunologist I saw. A couple of reasons which I wont go into here.
So, after a length post .... sorry tired folk out there 😗
My query is, does anyone know of an ME/immunology specialist in the UK, (pref up north!) who is understanding of the illness and takes time to listen?
Many thanks for reading this 😊