Oxford University has found ME is not... - Myalgic Encephalo...
Oxford University has found ME is not actually a chronic illness
Hi before I had even had the chance to come round properly this morning I had a phone call to tell me how to overcome my cfs (through positive thinking and exercise ) oh how funny I hadn't thought of that !!!!!. I who have severe chronic fatigue who has been bed bound for at least 23/24 hrs a day for eight months can't pick up a cup even at times without spelling the contents everywhere,I can't shower or wash my hair or eat even without a struggle as I don't have the strength to even sit up along with so many other symptoms it would take me too long to list and funny enough I don't have the energy .I a mother of three, who couldn't take my terrified son to his first day at a new school , who couldn't celebrate my other sons 21st birthday or even visit my son after purchasing his first home !!! I am unable to go to New York to celebrate my 50th birthday with my children which was going to be a surprise !!! Is it because id rather stay in bed for a change ?
How dare anyone even suggest to me that it's to do with having positive thinking!!!!
I would die for my children I am the most strong minded determined woman and was so energetic with a massive love for life !!!!! Why has no one asked to study me !!
This rag journalism is vile. If you watch the video (which is painfully slow and dull) it says nothing to support the written "report". And further down the page where there are comments the article is discredited. I wonder if we could sue the Telegraph for perpetrating a disability hate crime? I wish I had the energy to take these news hacks to task.
The appalling standard of journalism in this country just gets worse. This study is the second part of the dreadfully inaccurate PACE trial, at least it is done by the same people. I've signed the petition to get it retracted.
Thank you so much for highlighting the MEAction site. Didn't know it existed and it looks interesting. All I can manage in the way of shouting for action is signing petitions. 
Do me a favour! If only....
For me this report says nothing we don't already know. Yes exercise is good for you but you need the energy in order to do said exercise. My understanding is that once we have an understanding of what affects us and manage that then we can build on that and eventually be able to do more. But this happens over a period of time. Not over night. As for positive thinking I don't believe that there is one of us with cfs/me that doesn't want to get better and live a life doing fun things rather than being housebound or bed bound. Each person is different and what works for one may not for another with this condition we have to figure it out for ourselves, you can't get more positive than that. If I am wrong, I'm sorry. I am new to this condition.
