Anyone paid private for a tilt test for pots syndrome?

[Charts]

Just wondering if anyone paid privately for a tilt table test for pots syndrome and how much was it? My doctor thinks I may have pots syndrome but I know it will take time to diagnose and my symptoms are quite severe so I need a answer.

[Osteomyelio]

Have they already checked your viral titers for CMV and EpsteinBarr?

(many people will test positive for these viruses but unless they get the titers of viruses they may not have all relevant data that may play a role in a person’s Tilt Table test) My Insurance covered my Tilt Table

[Charts in reply to Osteomyelio]

No haven't had any of that checked. Would a neurologist do that? I'm seeing one in a couple of wks

[Osteomyelio in reply to Charts]

My neurologist ordered the tilt table because I had orthostatic hypotension and he was checking for neurologically mediated hypotension issues or if issues were related to viruses.

[roselavenders]

Yes, here is a list of doctors who diagnose and treat PoTS - also privately

potsuk.org/doctors

I saw a doctor privately for PoTS and get meds for it

[Charts in reply to roselavenders]

What meds did they give you? I know they usually give beta blockers but my Resting heart rate is low around 60, would I be able to have beta blockers as I would be worried it would drop my heart rate lower when at it lowest when Resting?

[roselavenders in reply to Charts]

I’m taking Ivabradine. My resting heart rate is very high though. I saw Dr Nicholas Gall in London who is really good and treats patients with different types of PoTS. I think they have a range of medicines, I do know some people with lower resting heart rates who get other medicine for pots, depending on what happens to their blood pressure (ie does it go up or down with standing)- medications include midodrine, Ivabradine, beta blockers.