Having a go at HRM pacing... Any tips? - Myalgic Encephalo...

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Having a go at HRM pacing... Any tips?

Starry profile image
7 Replies

Hi,

After the recent MEA article, my longest ever crash and a 7 day holter test I decided I want to have a go at more scientific pacing method.

I've taken the plunge and bought a polar a370 wrist device. (for the continuous HRM, small size, replaceable straps and battery and a known reputable make)

Amazed, my heart rate's literally all over the place. Its certainly a fascinating experiment.

If anyone knows how to programme an alert in polar flow software or how to calculate anaerobic threshold with accuracy {I've seen 2 formulas each with a range which give wildly different output figures} let me know!

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Starry profile image
Starry
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7 Replies

Good luck Starry hope you can keep things on an even keel.

Starry profile image
Starry in reply to

Thanks Raffs,

So relieved to finally be coming out of this post Christmas crash. Fingers crossed I manage to stay improved. Big hospital trip coming up to London mid month (pots tests round 2) so a little nervous how ill cope with that.

in reply toStarry

Just coming round from Christmas myself. I've also had a gastric flu thing and nasty chest infection which nearly put my lights out - I lost a stone in a week and a half.

On the plus side it has kicked me back into my diet, (gluten and dairy free with no processed food). I am starting to feel healthier and my RLS has gone quiet - long may it last.

Fingers crossed on the pots testing. Never had it myself so have no idea of what you are to go through but I could put a couple of pound on the whole thing being a taxing experience. Let us know how you get on.

Rose-Rose-Rose- profile image
Rose-Rose-Rose-

Hi there, there is a Facebook site called CFS/ME pacing with a heart monitor. There are lots of very knowledgeable people on there and pages of information. Good luck, using a heart monitor has helped me out loads As you can see That your body is struggling straight away.

Starry profile image
Starry in reply toRose-Rose-Rose-

Thank you Rose. I applied but there is a massive waiting list as it is over subscribed.

Rose-Rose-Rose- profile image
Rose-Rose-Rose- in reply toStarry

Basically keep your heart rate as low as you can for as long as you can in a day and don’t go above 100. As soon as you go up stop what you’re doing sit lay feet in the air if needs be and settle back down.

My resting heart rate is about 60 and after a major crash I lay, Keeping my heart rate under 65 if possible, (very difficult) Or under 70. ( still tricky)

I meditate, listen to Relaxing music, move as little as possible and try and do nothing for as many days/weeks as I can manage. This eventually got me over my crash and has for others.it can send you up a notch from your baseline too. Ppl on the website call it ‘deep rest’.

VMroom profile image
VMroom

Hi Starry

A

When I recover from this crash HRM is next on my list. Apparently this article has good tips.

sallyjustme.blogspot.com/20...

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