Is the Perrin Technique '80% self-administered'?

[DaveT81]

I only ask, as I've been looking into it and, unfortunately, the only registered practitioners near to me are almost 20 miles away.

Sure, to a person without CFS/ME, that's nothing but for me - who doesn't actually drive - that's either a very expensive cab ride or a painfully exhausting train and bus ride.

I came across one guy that says he trained under the Dr himself in Manchester but refuses to keep paying a yearly fee. When I contacted him back in April we were in lockdown and he wanted to do the sessions over Zoom, saying that the technique is '80% self-administered anyway'. I said I'd rather wait to see him in person. I refuse to pay a fortune to see an osteopath who tells me how to do it over a video call!

Anyway, I've contacted Dr Perrin's clinic as I'd rather travel the extra miles and see the man himself if I'm able to, eventually.

But is it true that you do a lot of the work yourself? I'm currently working my way - albeit slowly - through his first edition of his book but I've yet to come across the details of the technique itself.

[Cruzgirl]

Please don’t waste your money, these techniques have been debunked.

[DaveT81 in reply to Cruzgirl]

I mean, I've spoken to a lot of people it's worked for, and they apparently medically recommended treatment of 'pacing' is hardly doing anything for me so I'll give anything a try.

[peege]

Hi, David, I too looked in to the Perrin Technique however, I decided to follow Dr Sarah Myhill's approach. I have her book o kindle, bought some of the supplements on her fatigue list. The first to try was Ubiquinol which has definitely helped a lot. Injections of Vitamin B12 was recommended but has now changed to oral so I've very recently doubled my daily intake. Too soon to tell although yesterday I drove 3 hours after a week with a 14 month and a 4 year old. Normally I'd be wasted and flat out but I've walked 4 miles today, spoken to 3 people and feel not too bad. P (CFS)

[DaveT81 in reply to peege]

Hi peege, thanks you very much for your reply. I also bought Dr Sarah Myhill's book, I have yet to get around to reading it though! I've bought a load of new supplements myself so I'll have a look and see whether I've ticked any of her boxes already. I have been injecting B12 too, also have already version so maybe I'll have a browse through her book and see if I can get the rest of the vitamins, as it seems I'll be waiting a while to get any sort of sense out of Dr Perrin's clinc!

[Cruzgirl in reply to DaveT81]

Hi David, I really trust Dr Myhill. If you go to her website you will find all of her information for free there. It is easy to read in small chunks, with simple explanations. You can check YouTube for some of her videos too. I am a longtime ME person who has seen lots of research come and go.

Good luck!

[peege in reply to peege]

Hi again Dave, just to add to our discussing vitamin B12 before. I've now been taking my double dose of B12 for a month, the last two weeks I've been helping my daughter & son in law with 4 yr old and 14 month old. I absolutely don't know how I did it, the 4 year old came in to me at 6am every day. I was horizontal by 7.30 every night. I was hanging on by a thread and desperate to come home imagining I'd be spending at least a week in bed recouping some energy. I've been taking the 200mg of Ubiquinol starting a week before I left (normally its 100mg daily (see my previous post)), plus the double B12, (also started B6 so I don't know if that's helping), plus I've doubled up on D3. Basically I drove the 170 miles home on Sunday, UNPACKED THE SAME DAY - unheard of I might add - 2 nights sleep and I feel better than I have for a long time. Today, showered, washed & blow dried hair, had a coffee with my elderly neighbour (safely distanced over high brick wall) for half an hour, chatted to a friend on the phone.

Frankly is unbelievable, I'm glad that at least I can communicate with you here, no-one else understands.

Do read the Dr Sarah Myhill book, its not long. I'm overjoyed and hope it lasts.

Good luck with your query. P

[DaveT81 in reply to peege]

Hi there peege, so is it that you're taking 2000mcg B12 day with Ubiquinol and B6? I take two of those but only recently started B6 in folate form. I have to say that Ubiq is one of the few supplements I don't take. Maybe I should start! I've been taking sublingual B12 in recent days that packs 3000mcg per dose, I was also self injecting B12 too but maybe I should add that missing ingredient and see what happens!

That's amazing that you were able to do all of that though. I'm able to do that sometimes but inevitably feel much worse for it, especially the next day. Would love to get through all of that and not feel so awful for a change!

I am definitely going to finish Dr Myhill's book. I feel like following her program without actually having read the book properly is probably not a great idea to be fair.

[peege in reply to DaveT81]

To clarify:

B6 50mg

B12 2000ug/microgrammes

Ubiquinol 100mg (raising to 200mg daily a week before an event, during it & for a week after).

I've been back since Sunday arvo and already felt normal enough to drop to the 100mg of Ubiquinol hooray!

I get all my vitamins & supplements from Healthspan, freepost, good quality and reasonable prices - always taking advantage of sales & offers

Re Ubiquinol, after reading the list on Dr Myhill's fatigue list & beginning with 100mg a Naturopath friend advised me to take the optimum daily dose - 200mg - to really get in to my system. I can honestly say I felt a change in energy after approx 3 weeks.

I agree with Myhill regarding the mitochondria aspect. I'd had 5 x pneumonia, endless chronic chest infections from 2009 - 2013 before seeing respiratory consultant for that. (Lots of teenagers end up with ME after glandular fever). I moved from London 2015 by 2016 dx with CFS after many blood tests.....I always thought I had to be deficient in something like it D3, B1w or low thyroid but GP said no, "it's CFS and you have to learn to manage it". No advice on how to do that though

We're all different but I do hope it works for you. P

[RhianR in reply to peege]

Hi, what do you mean by "the double B12" please? I've self-injected B12 weekly @ 1mg/1ml ampoule since c.Jan '21. Private prescription as the NHS will only give me 1 injection every 3 months! Still feel crap even on weekly self-injected dose. I have Hypothyroidism due to Hashimotos ( and take meds for), and then came ME/CFS. What are your underlying illnesses? Thanks for any reply 😊

[peege in reply to RhianR]

I just mean I doubled my own dose of 1000iu to 2000iu (in tablet form). I'm following Dr Myhill's recommendations. She used to recommend only injected B12 though I think that's no longer the case. GP was no help after diagnosis, trial-and-error I'm sorting myself out.

I have lung diseases, many pneumonia and years of endless lung infections. I get by as long as I dont seriously overdo it. (Although I was treated for hypothyroidism in America, testing is different in the UK (and imho useless)) both my sisters have hypothyroidism. P

[RhianR in reply to peege]

Thanks do much for replying. Gosh it sounds like you've had so much to deal with, and I'm really sorry about that. You're right, testing here in the UK is absolutely hopeless! Now more than ever because, for example, my GP surgery won't even do my bloods (which are well overdue & I need my kidney function checking out asap) because they say there's a bottle shortage and will only do bloods if people are going into hospital. All of this due to the covid only NHS for 18 months. It's such a shambles and it'll all be privatised like in America which is what this Tory gov wanted all along. People like us will get even less help. Oh dear. Take care of you 🌼

[butyoulookok38]

Hi, I found the Perrin technique beneficial when I first got diagnosed. The moment I was convinced is when the osteopath pointed to an area on my chest and started that I would be experiencing pain there. I was and that lymph node is nicknamed the perrin point. Around mid way up your left pectoral. I made progress and after 18 months, I returned to work.

Unfortunately, my phased return was an absolute disaster and made my condition worse and I've never recovered. I noticed that some have claimed that it's now debunked, I'm not convinced that's correct.

I think timing is everything, if you're newly diagnosed, I'd recommend it, if your over 5 years into your illness with several relapses under your belt, perhaps it may be too late.

I still receive lymphatic massage now and again and find it beneficial though considering I'm in constant pain, almost anything would feel beneficial.

Good luck.