How the community works

[macularsociety1]

The community is moderated by members of the Macular Society team. The platform is provided by the HealthUnlocked (HU) communities team, but they do not run the community.

Views expressed are those of individuals and not of the Macular Society. The point of this community is to provide a space where you can share your experience, support one another, and become better informed about macular disease.

Feel free to start commenting and asking questions even now and we’ll do our best to respond as quickly as possible.

We also provide help and support to everyone affected by macular disease through our helpline on 0300 3030 111. Our helpline team offers friendly advice to thousands of families; you can also email the helpline at: [e-mail].

[Eternal]

I have dry macular degeneration in my right eye had this for 6 years. At the moment the other eye is ok so i can see quite well. My only problem is i have trouble reading at night even when its large print. I usually read better in the garden or with a good light during the day.

I was wondering how long i can expect my vision to stay stable im 62 years old.

[andy1955 Macular Society]

Hello Eternal,

Sorry for delay in replying.

Yours is a question often asked to our helpline and I am afraid that there is no exact answer. Even an optometrist or ophthalmologist would find it hard to predict the future until he/she has seen you a couple of times and compared the retinal scans or photos of your retina/macula between the two visits.

Some people report a severe deterioration in their sight 2 or 3 years after diagnosis, others do not see a deterioration after 10 years or more!

As for reading at night, as we get older our night vision does deteriorate; this is normal. Good lighting is very important, as you have found out.

Best wishes

Helpline

Macular Disease Society

[StokeySue]

Finally find my way here. A bit surprised no information about the forum is given in either the membership pack or the member's area of the Macular Society website