wet amd: Have any of you had serious wet amd... - Macular Society

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wet amd

GailGail profile image
22 Replies

Have any of you had serious wet amd in one eye and managed not to get it in the other?

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GailGail profile image
GailGail
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22 Replies
Caradog29 profile image
Caradog29

Hi, depends what you consider serious. I had wet AMD in my right eye and vision was quite badly distorted, though not lost. I think I caught it early though. Had 6 injections and haven’t needed any more in last 2 years. Vision restored in right eye and no problem in left.

RP1944 profile image
RP1944

Hi GailGail, I have wet AMD in my left eye which I have Eyelea injections for. I’ve had it about six years now and will have to continue with injections forever.I’ve been told I have dry AMD in my right eye, but so far it hasn’t caused any problems and I’m hoping it never does as my sight is good in that eye. Hopefully your situation will stay the same or improve. Best wishes.Ros.

GailGail profile image
GailGail in reply toRP1944

Thanks.

Ruthwrst1010 profile image
Ruthwrst1010

Hi Gail, I have wet AMD in my left eye and dry in my right eye... I receive Lucentis Injections which have helped tremendously! I pray daily for God to maintain my vision!

Fuzzbox100 profile image
Fuzzbox100

Hi Gail. Yes, same here - I’ve had 8 Lucentis injections in my left eye (and ongoing) but right is good so far! I ask each time i go to the injection clinic and I’m assured each time that the right is fine!

GailGail profile image
GailGail in reply toFuzzbox100

Thanks.

Getwell89 profile image
Getwell89

Hi Gail,I have wet AMD in my right eye and had Lucentis injections for four years. I have been told by two eye doctors that my left eye is good and most likely will not get wet AMD. I was relieved to hear that. I hope you fare as well yourself. Good luck to you !

GailGail profile image
GailGail in reply toGetwell89

Thanks

pinkperfection profile image
pinkperfection

Yes My right eye is very blurred and I have not had any injections now for over a year as they don't seem to work for me. However my left eye is good and I pray it stays that way as it is doing all the work. Good luck hope all will be well for you.

GailGail profile image
GailGail in reply topinkperfection

Thanks

fed13 profile image
fed13

I have wet AMD in my left eye. I have had umpteen Eylea injections in it and it is now stable. Very annoyingly my NHS District booking team keeps putting me on "the waiting list", and I have to ring up the consultants secretary to get my appointment when it is due. I should have routine appointments at specified times, (i.e. 6 weeks or two months: see the "Routine Follow Up" comments in these columns).

My right eye is fine, but is regularly checked . I also check it myself using the Amsler Grid! All the best and hugs xx

GailGail profile image
GailGail in reply tofed13

thanks

Penelopeflower profile image
Penelopeflower

Hello Gail, I have wet amd in right eye and dry in left, I have regular Eyelea injections in right eye which help to stabilise the wet amd, the left eye remains with dry amd, and hopefully that will continue. Best wishes.

GailGail profile image
GailGail in reply toPenelopeflower

Thanks

Ayralin profile image
Ayralin

Hello,I have wet AMD in my right eye for coming up on 4 years now. Lucentis injections have not improved the vision, only maintained. I have completely distorted blurred vision in the center of that eye. I will need injections forever, unless the eye goes totally blind or new treatments are developed. My left eye has no AMD, but does have a cataract that they are delaying operating on until it is absolutely necessary as I would have no functioning vision should there be complications. Best wishes.

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GailGail profile image
GailGail in reply toAyralin

Thanks for replying to me. Are you able to function okay with your one good eye. I am new to this and really struggling.

Ayralin profile image
Ayralin in reply toGailGail

Yes, I am having trouble with things. I had my first fender bender last March 😫 in a parking lot as my depth perception is off. Backing out of my garage, I broke my side mirror because I can't tell how close I am to the side. 😟 I park far from others now. I can't drive at night, maybe I could struggle if an emergency . I don't drive in big city traffic or highways as I can't see cars entering the freeway from my right side. I can't read many real books, Hot a lighted magnifier to use if I want to read a book. I use a Kindle e-reader and download books from my library so I can enlarge print. I can't sew much anymore, I can't judge the position of the needle on the machine or by hand, so I got a lighted magnifier on a stand and was able to sew lots of face masks for family and friends. I enlarge the computer screen fonts etc. I set any TV captioning on the largest font choice. I have installed safety things like night lights in bathrooms and hallways, grab bars in bathtub and have railings on both side of my stairs. All this has been a gradual thing, a little bit at a time. Whatever I am able to do to make things safe, workable, and to keep as independent as possible. It is a change, for sure. But I am thankful that there are the injections, as it has kept my right eye from being totally blind! We just have to do the best we can. Everyone faces challenges , so this is ours - we can do it ❤ There are many things to help us low vision people, websites with products, etc. If you are on Facebook look for a guy whose page name is : The Blind Life. He has Stargardt eye disease. Great product reviews. Best wishes, Linda

fed13 profile image
fed13

Pleased to report I am getting regular follow up appointments now, where both eyes are regularly checked and my dodgy left eye given an Elyea injection. My good right eye seems to be holding up. I tell you this whilst risking committing massive hubris!! xx

GailGail profile image
GailGail in reply tofed13

Glad to hear your getting regular follow ups. Good luck.

fed13 profile image
fed13

Thanks! FED xx

Magsofkent profile image
Magsofkent

Yes wet and dry Drusen in other

GailGail profile image
GailGail in reply toMagsofkent

How are you doing?

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