I am being treated for wet MD in both eyes with Avastin. It has been stable for 10 weeks and I have not needed shots, which makes me very happy. The plan is to monitor me every 4 weeks.
I would love to hear from others about how long their eyes remained stable.
I was treated with Avastin. I had 3 injections, Aug. Sept and Nov 2020. I have not had to have an injection since then and I am seen every 4 weeks. Praying all hold well for me and you also!
Hi, I had 6 injections in 2019. I have not had one since September 2019. I am now monitored every 3 months.
The bottom picture is from my 2020 March OCT test where the center black area shows fluid leakage. The top picture is 2021 OCT where you can clearly see the black area has diminished. The Eylea injections are working for me!
I have not had an injection now for about year and up to now my eye seems stable. I also pray it stays that way. It is interesting to hear from others about how long it has been since last injection. I am being monitored every 3to 4 months. Good luck to you.
Wow! How inspiring. Thank you for sharing. I know there are no guarantees, but it gives hope to see what is possible. I tell my family members each time my eyes are stable, and we rejoice together. And now I am rejoicing with you!
I'm due for my 1st injection this coming week, I'm really nervous and little afraid, any feedback you guys can share with me please
I think you will get more replies if you start a new topic rather than replying to one. But I can tell you I was really nervous because I had some horrible childhood experiences with my eyes and I got through it okay without a flashback, What helped was asking them to talk to me through the procedure. You might try taking a tranquilizer before and, if allowed, having somebody come in with you to hold your hand and soothe you. It didn't hurt at all!
good morning oldoakowl, even though owls arent usually up in the morning.
I think the most important thing to say here is that everyone is really really different.
How long your eye stays good depends on so many things, such as at what point you realised there was a problem and began treatment.
In my case because i am very myopic for my whole life I never responded to the signals of the disease because I was always struggling with my eyes. I had also never heard of macular degeneration.
So when the damage happened it was enormous and impossible to contain.
Nevertheless Avastin helped to keep the deterioration reasonably slow for about a year.
Then it stopped working so well. The doctor said that this often happens and changed to Eylea. This is better than nothing but now 1 year later i have to accept that I will only have a small percentage of sight in that eye. Thank goodness time actually does help and I can now accept the situation. Can still drive, read etc with the good eye.
Then the good eye started to become damaged. It was returned to normal with one eylea injection and has remained normal almost one year with eylea injections every 2 months.
But I was of course living in fear that both eyes would become as bad .
So my specialist sent me to another hospital for a second opinion,
There I discovered that it is very important to know WHERE the damage is in the eye. If it is near the fovea it causes much distortion and blurriness. But if it is nowhere near the fovea it is possible that the eye stays good for years. Myopic macular degeneration is supposed to go slower than non-myopic.
So if you know where the damage is it could make you feel more confident about the future. It sounds like you got treatment early enough to have a really good prognosis !
thank you! That is really useful information. I'm really happy you got it quickly with the second eye and it is fantastic that you can still drive. I can't, and I hate losing that independence.
yes, its terrible. I can only drive on routes I know really well and can never go on a motorway again. However I have just bought an electric bike and this is really FANTASTIC. Does give a bit of that independent feeling back. Could an e-bike be something for you? When you cant read the road signs you just race right up up to them and look em in the eye. And its really safe for low vision cyclists. Or does Britain not have many cycle paths ?
Just adding my voice. I don't have macular degeneration, but BRVO--branch retinal vein occlusion (as in Bravo! Your vision is at risk!). The eye affected is my primary source of vision. Avastin helped for quite a while, until I had another occlusion. I had a Lucentis injection, which gave me brilliantly clear vision but, alas, the effect was brief. Since then I've had Eylea every six or seven weeks and been stable for--I think--three years. Last week I talked with two other patients: One had been on a similar protocol for eight years, another for twelve. Yes, it's a nuisance visiting my ophthalmologist so often, but I feel so blessed to still be able to read, write and watch non-blurry television. And I love my doctor for her persistence.
Just had right eye injected with Eylea yesterday and was told next one will be 12 weeks as scan showed almost dry and I read pretty much the whole chart, bar two letters of the last line! Left eye however is a different story as after a mini stroke last May I could not receive Eylea for 12 weeks. This meant I went 17 weeks without an injection which had been both eyes together and every 10 weeks. So left eye is now on every 6 weeks as had sadly deteriorated to worse than pre treatment state ..it’s getting better but more slowly than I’d like but must be patient.
I miss the chat with other patients in pre COVID times as found there were people still receiving injections after years and others just needing
monitoring.
As with most things there is as yet no way of determining who gets the best results and how many years we’ll be treated. However I’m just glad there is treatment as when my late brother developed the condition 18 years ago it wasn’t available and within a short time he was registered blind. My other brother and I are therefore ‘happy’ to receive the injections!
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