Macular Society
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Sunflower

I have had branch retinal vein occlusion for 2 years. I have been treated with ozurdex,avastin and Eyelea. One eye only. My vision was 20/40 at start of treatment and now finger counting only. I also had a small tear in my retina repaired by laser. My vision is 20/20 in my other eye. I am torn on continuing Eyelea injections. Does anyone have any similar situation. I am very thankful for my 20/20 vision in my left eye. The macular edema is the problem.

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Hi codeblack .I started treatment for my brvo in left eye 2 &1/2 years ago. Had 19 Lucentis 4 eyelea and an ozurdex implant 5 weeks ago.

I feel personally that if oedema continues to worsen my sight and there is any treatment that slows or stops it then it's worth it. My good eye isn't that good on its own and I'm desperate to be able to continue to read.

Only you can know if you've reached the tipping point of no discernible benefit.

Other than losing more sight I don't actually know what will happen to us if the oedema is left to grow in the eye -is it self limiting? I haven't asked my Dr that question yet as for me the steroid is working currently and I try to live in the moment.

I wish you all the very best with whatever you decide xxx

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I am thankful for your response eyesright. I have had the ozurdex implant and it did work for me for awhile,I called it my mini-sub. I could see it in my eye for several days. I hope your vision in your other eye does not worsen. I am glad that I found someone with the same duration of treatment. Maintaining the vision we have is key. Thank you so much for sharing your story. I hope the ozurdex is your answer.

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Hi cb, how's your eye oedema? I'm now on third ozurdex with side effect of cataracts! 3 +yrs and counting..... They say I'm now a chronic case. Hope you're doing better.

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Hi eyes right,

The oedema comes and goes. Getting Eyelea inj every 2 months. I can only see finger counting with that eye but the other one is 20/20. I am blessed. One of the side effects being a tear in the retina fixed with laser. I hope your vision remains stable with the ozurdex.

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Hello Codeblack7,

So sorry to learn about your branch retinal vein occlusion (BRVO) and macular oedema. I guess you live in the USA?

Whilst I am sure others will share their own experiences with you, the Macular Society have factsheet on both BRVO and macular oedema.

If you would like copies emailed to you, please sent an email request to help@macularsociety.org

Best wishes

Macular Society

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Hello codeblack

I am sorry to read about your eye problems. When things get worse rather than better we try to think of all sorts of reasons why that should be so when others report reasonable success. I do believe that your macular oedema is caused by your BRVO, but while there is the slightest chance of maintaining some eye sight, no matter how little, it is worth carrying on with the injections. I think you need to talk to your consultant and discuss your feelings and doubts about the treatment with him or her. I know it must be distressing for you to undergo the pain or at least discomfort of the treatment for seemingly no result, but don't throw in the towel in before you have spoken to the specialst.

By the way, take heart; I read that BRVO "usually" affects only one eye, though I don't know if that is true. Anyway, cling to that hope.

I wish you all the best.

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Thank You for your info. My first retina specialist told me he was certain he could reverse the damage with avastin injections. Had 2 of those. Edema persisted and he switched to ozurdex. On ozurdex about 13 months. I ask if he still believed he could reverse the process. He stated he wouldn't be treating me if he did't believe it -- about a month later he said I should choose between continuation of treatment or stop. I have chosen another retina specialist who is trying Eyelea injections. He is also a man of few words. I will keep trying.

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I think it's best to continue talking to Eyesright here- it seems odd that they only tried 2 injections the first time but I don't know enough really. I have bro and have had 7th injection(last week) They haven't been able to move me to 6 weekly injections yet but we are trying 5 weeks next as my eye had dried up.

See what eyesight says about the treatment you have had!!

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hey cb i had my first Eyelea injection 5 days ago and dealing with incredibly itchy eye post eye injection with loss of sleep...cold compress helps but no relief from visine totality or artificial tears. Anyone with eyelea injections with rx recommendation for itch syndrome post eyelea inj? thanks in advance

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Hi pudwink, is eye sore as well as itchy? Probably residual iodine. Ask for a better wash out next time. I find Hylotear drops help me as they're thicker than other drops so seem to stay in eye better but you do need to use them regularly 4 x a day minimum. If symptoms don't improve by the end of the week ring your eye clinic for advice just to be safe.

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Hi pw,

Sorry about all of your diabetic complications. I have 3 years experience of intravitreal injections. Presently Eyelea. I am now using a larger bottle of eye wash that's chilled. When I get home I keep rinsing my eye with the sterile solution and use systane eye drops for lubrication. My main problem was the burning from the betadine. The doctors office tech was using the wash after the injection so I followed suite. Check with your doctor to make sure it's ok. Good luck.

Cb

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