Eyelea injections

[Patjo]

Had myreview after my 3rd Eyelea injection today. Doctor said they are not working and my wet md is getting worse. Will try 2 more injections and see what happens. I am so distressed by this. Has anyone else been in this situation?

[thom3patty]

I had avastin not work then worked

[Hidden]

Sending you a hug x

I have a different condition but had a rollercoaster experience with inj. First Lucentis then eyelea, sometimes they worked, then not. At least once I ended up worse than when started but the next inj cleared it . It just didn't last for me.

There's every chance the inj will kick in for you but you may be one of the many who will need them regularly.

Easy to say I know but try not to worry, it won't help. It's early days yet, see what the next inj do and go from there. The macular society offer great support and info and this forum is a good place to help you feel not so alone. Let us know how you get on, we're all rooting for you x

[thom3patty in reply to Hidden]

Your words r perfect some injections work better than others some take longer but one this is for sure we all have this group for support no one can understand what we go thru unless u actually have gone thru it I love the helpful hints and all the support I get here ❤️

[RandyM]

I had Avastin injections for a year that helped my eyesight and stopped the bleeding of the wet macular, but when I changed to Eylea after 3 injections, my eyes were slightly worse. I'm thinking of going back to Avastin. Patjo, I hope your situation improves.

[jwitts]

I haven't experienced this. I'm on Avastin and it's up and down. I know how hard it is wondering if and when an injection will work, and I'm so sorry you're going through it. Sometimes it does take more than three--and also there are other medications that can be tried when one fails. Best of luck.

[Rosalyn-helpline Partner]

Dear Patjo,

I am sorry to read of your concerns.

Please contact us on the macular Society helpline if you would like to discuss this further.

Just to make you aware, the impact of the diagnosis of any eye condition and indeed any stage in the process is generally compared to experiencing bereavement. Individuals frequently go through very similar feelings and responses and in no set order. We do have a free telephone counselling service. Please contact us for further details if this is of interest. We need the individual’s verbal consent in order to be able to refer them. It takes a counsellor a maximum of a week to make the initial call. Our counsellors are fully trained and the majority have sight loss themselves. Sessions consist of approximately 6 of around 45-50 minutes each. I am copying a link to our booklet Emotional impact which references the counselling service:

macularsociety.org/sites/de...

In addition, I am copying links to our Guide to AMD,

macularsociety.org/sites/de...

our booklet on Treatments

macularsociety.org/sites/de...

and our Essential guide to wet

macularsociety.org/sites/de...

In addition, the following link may be of some interest to you:

macularsociety.org/news/nic...

NICE Clinical Guidelines FAQs for patients

Just to make you aware, we are currently offering free 6 month membership. This is a good way to keep up with current developments. Please ring us if you would like to benefit from this, or join via the following link:

macularsociety.org/6months

I hope that this addresses your query.

Please do not hesitate to contact us if we can be of any further help. The Macular Society helpline is open 9am – 5pm Monday to Friday on 0300 3030 111.

Alternately, you can contact us via:

[e-mail]

Kind regards,

[Meamd in reply to Rosalyn-helpline]

What is the telephone support number in USA i am in Fla

[Rosalyn-helpline Partner in reply to Meamd]

Dear Meamd,

You can access us via:

0044 1264 350551

Kind regards,

[eyeprotect]

I had at least six Eyelea injections and although the macular oedema reduced (the fluid that gathers in the eye) there was little or no improvement in my vision. Now I've had the Ozurdex steroid implant. There is an even greater reduction in the oedema but still a lot of floaters following the implant. The implant dissolves completely over a period of months and peaks in performance after about six weeks. The procedure is really not that different from the Eyelea injection. I had to get the implant as the gathering fluid was threatening to impact on the part of the eye called the fovea. As far as I can see (no pun intended!) these treatments are to maintain whatever degree of vision one currently has but the eye will never be restored to its once pristine condition.