Retina vein occlusion

[leardallan]

Does anyone have retina vein occlusion? Waiting for an appointment.

[Macular_1]

Hi Leardallan,

Have a look at the Macular Society's factsheet about retinal vein occlusion at the following link;

macularsociety.org/sites/de...

Best wishes

Macular Society

[leardallan in reply to Macular_1]

Thank you. Good information. Allan

[rosyG in reply to leardallan]

I have a branch vein retinal occlusion. - do you want to know anything specific ?

[leardallan in reply to rosyG]

Hi, how did they treat it.

[rosyG]

hi

see my direct message

[shoshrachel]

Hi! I was diagnosed with retinal vein occlusion one year ago. I was rapidly losing sight in one eye because of it. The first appointment with a retinal specialist he decided to just monitor me, but a few weeks later he decided it was getting worse too quickly and I was given the choice of lose my sight or start having Avastin injections in that eye every 6-8 weeks. Sometimes they weren't too bad but I had bleeding and more pain as they went on. Unfortunately the last injection gave me countless silicone floaters in my eye and so the doctor has decided to use Lucentis injections in the future. I'm fairly stable now but there is no cure for the blood clot once you have it, only management, & everyone responds differently to the treatment.

Hope that helps! Good luck and wish you the best

[leardallan in reply to shoshrachel]

Thanks so much! Gives me an idea what to expect. Still waiting for an appointment. Allan

[shoshrachel in reply to leardallan]

You’re welcome! Also I was surprised that while with other medical conditions I generally have quite a wait for an appointment, when I discovered I had a RVO the retinal specialist got me in the very next day- this is because it’s a serious condition that the longer it takes to treat the more risk of losing sight. It’s definitely worth pushing hard to get treated immediately

[rosyG]

Have sent direct message- Eyelea injections are working well for me- not sure of long term position yet

[leardallan in reply to rosyG]

Thanks Rosy!

[Hidden]

Hi, I have branch rvo with macular oedema. Had 19 Lucentis then 4 eyelea inj now waiting for 3 rd ozurdex steroid eye implant. My experience has been a rollercoaster but the treatments have always had a positive impact on my oedema just not one that has lasted. So far! I've posted a full account here which you can read if you click on my avatar.

You should always be proactive with your clinic to ensure your treatments are given on time - sometimes we slip through the gaps but you need to prompt them so you don't get ( more) permanent damage. Read all you can about your condition and ask your clinic Dr lots of questions.

It's a big thing to deal with emotionally so be kind to yourself - sending you a hug. X

This forum is great and the macular society is fantastic. Best wishes going forward x

[leardallan in reply to Hidden]

Thank you so much, Allan!

[enopmar]

I was diagnosed in November 2017 but I am sure I had the condition a few months at least prior.

I had 5 avastin injections then went to Eylea. I've gotten the injections every 6 weeks. While it's improved noticably, I still have a fog in the central vision of my right eye. I had due injected last month, the vein is still slightly leaking.

If it's any consolation brvo is totally not macular degeneration. Brvo can be helped.

I am in the US, by the way. I know most people are in the UK. Good luck!

[enopmar]

Also... Not sure if you've had an injection yet, but... Trust me, the anticipation is far worse than the event. You won't feel a thing but a little pressure, and you won't see the needle. Just stay calm and remember to breathe. Once I counted from the time I felt the pressure till done, it was like two seconds, so fast. BREATHE! 😜

[leardallan]

Thanks, eases my anxiety over the whole situation. My Father has Macular Degeneration when he was 62. Lost his license. GrandFather lost his eyesight due to a stoke when he was 58. I am 66.