For the last 3yrs I have been meeting with the remarkable Manchester W&M group and thought that it was high time I joined the Macular Society!
I was diagnosed at St Paul's Eye Research Unit at the Royal Liverpool Hospital with choroidal melanoma (eye cancer) in 1994 after being under frequent observation since 1978 thanks to an astute optician. In 2006 the tumour was seen to be growing, I underwent ruthenium plaque brachtherapy where a radioactive button is sewn onto the back of the eye and removed after several days. The tumour is now dead but all of us with this condition are at v high risk of incurable secondaries. After a further 3yrs I went blind in the eye. Eventually, referred back to Liverpool where the brachytherapy was carried out cystoid macular oedema was diagnosed, I received my first Avastin injection and within hours useful vision was restored. Now, 6 1/2 years on I receive Lucentis injections. I had my 59th a few days ago.
Due to the high risk of metatseses, secondaries, I undergo 6 monthly MRI scans with contrast and weighting at the Experimental Cancer Research Centre in Southampton General Hospital.