need some advice please

Hi everybody... I hope you are feeling good today..

I have been suffering for many years with with an undiagnosed condition, I lost both my knee caps through it and now 25 years later , I have been diagnosed with CRPS, Fibromyalgia and sicca syndrome and Raynuads...

Over the last few years I have developed very strange rashes and have been diagnosed with jessners lymphocyte infiltrate but I have to see a prof at the bath mineral hospital. I checked him out and he specializes SLE and Lymph type cancers.... Has any other Lupus suffers experienced JLI ?

I look forward to hearing from you ,

confused of Wells Somerset

Jo

4 Replies

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  • I know skin rashes and lesions are not uncommon in Lupus, but a quick google search reveals the Royal National Hospital for Rheumatic Diseases in Bath as being one of the only national centres to offer specialist CRPS rehabilitation.

    I would imagine things will be much clearer for you once you have seen the specialist.

    Best wishes

    Val

  • Thank you Val I am under the mineral hospital .. about 5 different dr's and specialists... hope we find out something conclusive soon.

  • Thank you Val I am under the mineral hospital .. about 5 different dr's and specialists... hope we find out something conclusive soon.

  • I have not, but I will try to find out something online about it. Diane inrichmondvausa

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