Hey how u all doin??
I know i sound like a grump but i hate this life so much .....I just want it all t go away now and my life return to normal ....... xx
Hey how u all doin??
I know i sound like a grump but i hate this life so much .....I just want it all t go away now and my life return to normal ....... xx
Feeling just like you right at this moment. How wonderful it would be to wake up in the morning and be normal again. x x
I try and test without medications but really makes life miserable. So I take the meds anyway... it's the only way to make it bearable.
Yes, medication is my saviour and my consultant is my god. He takes the time to listen and has helped me achieve many goals, like being free of the wretched wheelchair. Thanks to him, I do get to savour glimpses of normal which I do my best to hang on to. Best wishes.
Life is beautiful and i hate to say this with Lupus you are never going to be normal again,but you can be as near to,take your meds,take some rest,
And hopefully you can go into remission .
Take care
Life will be normal, it's just that as lupus pals we have to make adjustments that a "normal" day now for us is much different from what a normal day was before. The pains and not knowing where it is going to strike next comes in waves that can knock you off your feet, but we will have better days too. Keep positive
Turning round a flare-up is like trying to turn around an oil tanker. It takes ages to slow it down then bloody ages to get it going the other way! Keep taking the meds, the only option we have is hope. xx
I know how you feel but to be honest what is normal in this world we live?! We just have to keep on fighting. Take care. x
I was diagnosed with Systemic Lupus in 1981. I watched as my friends that were in their 20's and then 30's and so on could do much more that me. I always would wish I could be "normal". A wise doctor of mine said that I need to quite comparing myself to everyone else. Unfortunately because of this disease I will never be the "normal" I wish. I do not know why I have to experience this in my life but I have learned to compare myself to my self. I am grateful for the good days and try to do those things that will help my good days become more frequent. I have lived a fairly normal life in my view. I have had many years of IV chemo for my kidneys, been on prednisone for 23 years, been taken care of by my own small children, but I am so grateful to see my children grow up, have children of their own , and enjoy time now with my husband. I prayed in 1981 to live long enough for my children to grow up. I feel that each year now is a bonus. Keep fighting! You will bless so many lives with what you have gone through and continue to go through. Hugs and kisses to each of you!