MY GHOST: My ghost is haunting me, it wont let me... - LUPUS UK

LUPUS UK

31,727 members28,087 posts

MY GHOST

pollywolly profile image
7 Replies

My ghost is haunting me, it wont let me sleep, its always taunting me and making me weak, it tries to stop me from living my life, it makes a fool of me to everyone else, do i imagine my ghost that cause's me pain? no i do not. I know it's name, no-one can see it, tho its always there, it think's it can beat me & drive me mad, i will not allow it, its making me sad, my ghost will not leave me, so please be kind, my ghost is called Lupus, im not out of my mind.

Sometimes it's difficult to explain what lupus actually is and how it affects us, this is how i feel about lupus, it's my ghost. x

Written by
pollywolly profile image
pollywolly
To view profiles and participate in discussions please or .
Read more about...
7 Replies
teecayc profile image
teecayc

Did you make this poem up? That's a really good explanation!

pollywolly profile image
pollywolly

yes i did lol...thankyou.x

lucy-may profile image
lucy-may

wow l like this very much x x

lupiedeb profile image
lupiedeb

sums lupus up nicely :)

janiceray profile image
janiceray

I thought you were mad at the begining,but you are not.would you mind if i take a copy for our Lupus local newletter.

Please let me know.

Love & Sunshine

Jan

pollywolly profile image
pollywolly

Yes of course you can Jan, im flattered! thankyou ;) .xx

Acorn1 profile image
Acorn1

This is great Polly. The Lupus seems to have ruined my ability to be creative with the mind fog and tiredness, Well Done, your poem is spot on.

I call my Lupus the beast as it mustn't be angered. I feed it well and give it lots of TLC and sleep. If not the bloody thing attacks!

You may also like...

Does anyone remember that article about medical ghosting?

everyone is as well as can be. Does anyone remember that article about medical ghosting? Tx Also...

Why are my bloods not playing ball?

trying to make out is can you have Lupus with normal bloods - i have all the symptoms (lupus...

I've stopped taking my medication

to be affected by not taking it. Did anyone else stop taking their meds and how has it affected...

ouch my knee and thumb...

arthritis, read somewhere thyroid can cause arthritis of some kind, then the Lupus....I had the...

My friends ❤️ would you mind if I stayed a while

fits like lupus or uctd lupus like this is the only site where it all makes sense Would you mind...