hi i m trying to find out why i m so ill... my first blood count has come back normal..i have so many lupus symptoms..am i in the clear..?

[lina]

i went to my dr last week with intermittent, spontanious bruising, my body hurts terribly, i feel constantly tired, i have a bad reaction to the sun and sores up my nose on and off, head aches and psoriasis , scaly, lesions on my elbows and knees ( a few spots also on my back belly and feet)..please advise?

[Hidden]

Hi, My name is ken and i would not mind betting that the amount of doctor s that thosoe of us who have lupus have been throgh is enormoumns. Please take heart Look on it as a long journey, For resasons I do not know way, it takes a long time to get a Lupus diagnosis if thats what you have. There are other nastys lurking out there. Just get to your GP tell him /her that you are not putting it on that you are genuine and get them to work for you. You don t get the symptoms you describe for no reason.

Good luck

Keep us imformed how you are getting on.

Ken

[Yols]

Hi, sorry to hear you are struggling so much. Try not to worry too much, sometimes the doctors need to take several blood tests as for some reason they can fluctuate. Even though your result has come back normal, you may be in the clear but my guess is that they need to try a few more blood tests just to be sure. I don't know if this answer helps, and hope it does not confuse you more! I remember my tests were not always conclusive, you just have to trust the doctors and unfortunately sometimes this takes time to get some answers. Best of luck to you Lina. :0)

[Boldonganny in reply to Yols]

After years on being ill and blood tests normal most of the time,only slightly raises esr sometimes, was sent to dermatologist for sking biopsy. Have typical butterfly wings over face. This confirmed lupus. When that is controlled by plaquenil, I come out in red cheeks and spots as have roseacea as well. Have all the other symptoms of lupus although ana is never positive, rheumatologis said I am one of the 5% whith negative antibodies. Now it looks like I may be developing Hughes syndrome as well

[Jude65]

Lina, did your doctor do specific tests for Lupus? If not, ask for these to be done. Lupus puzzles many GPs because it is such a strange disease and so difficult to diagnose and they don't necessarily come across it very often. Don't be afraid to go back and say that you feel so ill that you want more investigations done.

Keep trying until you get an answer.

[lina]

Thankyou for taking the time to reply and for your good wishes My GP did a full blood count? i don t know much more than that...it was the receptionist who told me the results were normal. I know there is something wrong with me, but often i have made appointments for the less troublesome ailments and by the time i get to see my GP the symptoms seem to have subsided.. I try not to make a fuss for fear of sounding like a hypocondriac, my doctor is also aware i have a history of recurrent anxiety and depression so i m always worried he sees me as worrying for nothing. In some ways i wish that something obvious would show up so i can get a definate answer! how bad is it that i was almost hopeful of an abnormal blood result just so that someone could see that i am not very well! I feel awful for thinking that way. I am due to see mr dr again on tuesday so will do as advised.. i will keep you posted, thanks again for your time and best wishes to you

[Gillyg]

Hi, not sure if you have been diagnosed with Fibromyalgia as well as SLE but until this week after feeling unwell for so long and my blood tests coming back normal that I was told that it is my Fibromalgia that is making me feel this way. I never understood before it could do this. I have been taken off one of my medicines because I am getting too many infections, the idea is to break the circle. Fibromyalgia is a very painful condition and you have very painful area's all over the body. Just check with your doctor so he can check you out. It doesnt show in a blood test. This is my consultant and not my GP that has explained I really think GP's just don't take enough interest in immune systems and just fob you off. Not very helpful. Take care and look after yourself.

[lina]

hi and thankyou, my mum suffers with fobromyalgia, i see how she suffers and its very unpleasant. I am going for more tests on tuesday. AnA plus a repeat of some of the ones i had before and something else he mentioned, but as fast as he said them i forgot ? My GP said that lupus was something he had studied at med school but not encountered since. He recognised that i had a slight malar rash and said that the symtoms are relevant but more test are necessary before we discuss a referal to see someone else. Could i please ask...i was diagnosed as having Juvenile rhumatoid arthritis in my knees and hips at a young age (9), i grew out of this. My mum, nan and great-nan all had/have thyroid disease, is this relevant enough to mention in respects to my lupus tests? many thanks lina

[Yols in reply to lina]

Most definately you must mention about your juvenile rheumatoid arthritis and mum and nan's thyroid history - this is all relevant to lupus and may help complete the diagnosis. Hope the test results helped. Best wishes. Yols :0)