To cut a long story short I was diagnosed -via letter- some months ago by a dermatologist as having subacute cutaneous lupus, (my main symptom is a photosensitive raised rash, in addition to some join pain plus fatigue) When I went to my GP for some clarification with reference to this diagnosis, she referred me on to a rheumatologist, due to joint pains.
The rheumatologist prescribed plaquinil and regular monitoring, including ECG and chest x-ray, as well as further blood tests, this form of monitoring suggest they suspect SLE as opposed to SCLE which from what I can gather from my own research tends to remain fairly 'localised' to the skin, and rarely develops on into full-blown systemic lupus. I'm quite confused.
I was wondering if anybody would mind sharing with me their experiences in relation to SCLE, and whether anyone know exactly how doctors go about 'classifying 'lupus patients; are their particular pathological differences between the types of lupus?
I know these are really questions for the consultants, however when you are in that little room faced with lots of new information your mind goes a little blank. I've only now really started digesting everything that has been told to me in relation to my health.Sorry if this all sounds a bit vague, this is my first time using such a forum.