Tests: Back 2 the doctors again, i need 2 get... - LUPUS UK

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lpatterson profile image
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Back 2 the doctors again, i need 2 get. Stronger pain med and somethin 2 help me sleep better

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lpatterson
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tintin49 profile image
tintin49

when my rjeumy offered me more drugs i stopped taking anymore and sought a second opinion. this consultant offered me even worse toxic drugs. seems to be the course for lupus sufferers.

hate the pain its draining and painfull and depressing but the drugs really freak me out

I am experiencing a very similar phenomenon to Tintin49. They just throw more drugs at me now - I think it is because my lupus has reached a stage where they just don't know what to do any more. They've told me (both the Renal consultant and the Rheumatologist) that the most important thing is to keep my kidneys functioning and stop the lupus attacking them any more. So all the side effects of the Mycophenolate (the worst of which is that I CANNOT sleep, but also includes joint pain, muscle weakness and headaches) are unimportant for them - and they just throw another drug at me.... sleeping pills, anti depressants.... who cares?????

I haven't taken these yet - but am looking for another way to get some sleep!

Seems that we are quite divided here in how we feel about about our drugs. Good luck with your GP lpatterson. I hope you get what you need!

Coppernob profile image
Coppernob

What sleeping pills have they given you and at what strength. I often have to resort to Temazepam 10mg - though I can usually get away with half or even quarter of a tablet. Slightly drowsy and slow to get going first thing in the morning but once that clears - and it doesn't take long - I actually have more energy for the rest of the day. Might be worth 'biting the bullet'? Can't hurt to try, surely? Good luck anyhow.

in reply to Coppernob

Thanks Coppernob - it's zopiclone, which is supposed to be perfectly safe and non addictive, but I have an inbuilt resistance to the idea!

Also amitryptiline.... no, sorry. just NO.

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