Mapecrine

[Flows]

Hi again all. So ive started mapecrine 100mg . I dont know if its in my head but i have gained weight since taking it and also feel like im holding on to water weight as well. I dont feel my eating habits have changed so just wondered if anyone one else has experienced this. There isnt a lot about mapecrine on line. Thank you x

[PMRpro]

Have you been searching for mapecrine? That is the wrong spelling - it is mepacrine, Google can be very fussy though it would normally correct the search.

guysandstthomas.nhs.uk/heal...

[Flows in reply to PMRpro]

Yes that was a mistake but it does auto correct. Thank you replying

[Whippet_lady]

I've been on mepacrine for a couple of years and haven't noticed any side effects at all. It is the only medication I've taken that has managed to rid me of the horrible itchy SCLE rash. It is a godsend!

[Flows in reply to Whippet_lady]

Thank you 4 replying its useful to know other peoples experiences x

[Babs511]

Hi I’m on Mepacrine and do retain fluid. It’s very new to this country and was found to be successful in the States. It’s helped me a lot with inflammation and my rash. Actually I was discussing this drug with my professor this very afternoon. They are gleaming more evidence as more people are on it and for longer periods.

[Flows in reply to Babs511]

Thank you thats useful to know x

[StriatedCaracara]

I have lost weight on mepacrine as not so hungry.

[Flows in reply to StriatedCaracara]

Yes I did see something about this. Have u found it useful to take? I think it may be helping with my tiredness and swelling but dont know if im just having a good run at the moment since my last flare. I was prescribed it not for my skin as i dont have the lupus that affects the skin just SLE so was a bit unsure of taking it. Thank you 4 replying it really helps and is appreciated

[StriatedCaracara in reply to Flows]

Been taking since January.I think I'm feeling less tired.

I'm sleeping better.

I think my skin is improving but I also think it is affecting my nervous system. I go swimming and have suddenly got stronger. (My arms feel stronger and leg kick swimming I no longer need to think about). I was getting one sided migraines they have stopped. It might also be that I'm tolerating the sun better.

I'm on 300mg hydroxychlorine. 50 mg Mepacrine three days a week.

[Flows in reply to StriatedCaracara]

Thats great to hear its benefiting you so well. Im on 100mg perday for 5 days. Just hope im not going to turn yellow. I wish you the best with yr health. Thanks again for taking the time in sharing yr experiences.

[bathouse]

Hi

No negative side effects, my skin has a nice tint to it now 😁

[Flows in reply to bathouse]

😁im glad u have no side effects and you are liking the slight tint. Thank you 4 replying.