Every Story Matters is your chance to share your experience of the pandemic with the UK Covid-19 Inquiry. Every story and experience is valuable in shaping the Inquiry’s recommendations for the future.
Help them to hear the voices of people with lupus and their friends and loved ones. Your experience matters.
Share your experience at everystorymatters.co.uk or see our website for more details: lupusuk.org.uk/contribute-y...
Done. Quite upsetting to revisit (partly because we are still living it).
Thank you for sharing your story with the Inquiry, I'm glad they will be hearing your experience, though I'm sorry it was upsetting to revisit. If you need to, I'd encourage you to contact one of the support organisations in their list (covid19.public-inquiry.uk/s... to talk to someone.
I have a therapist (another expense), but thank you. Good to know for others too.
I agree Treetop 👍I've been thinking about completing it n just thinking about it has made me realise what a nightmare it was...AND still is!! 🤗💜🌈Xx
Yes, I don't know if we will ever be able to process it. The 'let's forget all about it' madness isn't helping either! Take care xxx
I flipped today when I was told that COVID was "just a sniffle now," by a family member. I've had covid twice and am now left with long covid on top of SLE. I was bedbound for 8 months. I'm speaking up and not letting people get away with saying such nonsense around me anymore. X
Denied Covid-19 Vaccination 
Methotrexate, steroids, COVID-19
Those on immunosuppresants and Covid 19 vaccine
