[b]Important survey needing more responses from people from ETHNIC MINORITIES and non-white ethnicities please. [/b]

[Chanpreet_Walia]

The University of Cambridge study into quality of life, neurological and mental health systems, and medical relationships from rheumatology patients had a fantastic response rate and they are soon to publish their first paper which we hope will improve care and understanding. We will share some of the results with you very soon.

However, they received very few responses from people from ethnic minorities. It's so important that research represents as many different groups as possible and finds out if symptoms, medical relationships and challenges may be different for different genders and ethnicities.

So PLEASE do complete this survey! It is much shorter than the one available last year and is open to all systemic rheumatic disease patients (e.g. lupus, rheumatoid arthritis, vasculitis, Sjogrens, PMR, UCTD etc).

PARTICIPATE HERE - bit.ly/inspire_patients_short

Thank you,

Chanpreet 💜

[SurferGuy]

I'm sure I did it first time round, but just in case, I'll do it again

[SurferGuy]

Hi Chanpreet, I'm wondering if there's a glitch in the survey! I've just recommpleted it, added my details to be contacted again if needed, and when I submitted, it goes back to.the beginning of the survey. There's no mention of the survey having been completed.

[Chanpreet_Walia LUPUS UK in reply to SurferGuy]

Hi SurferGuy, thank you for letting us know. I will pass this information on so the team can check their survey in case this is an issue others are also facing too. Thank you ever so much for taking the time to take part again! 💜

[buzzards]

Hi Chanpreet, I've just completed it.

[Chanpreet_Walia LUPUS UK in reply to buzzards]

Thank you so much, buzzards! 💜