It is great that so many of you have learnt the hard way to keep as much documentation as possible. 😉
They have lost my documentation many a times , very opportunistically. So my record has some small pieces from 2004-2008, a gap till 2016 with only one letter. And the rest is lost to a hospital where a bunch of notes are by all means hidden. Probs deliberately tbh.
When they mess up, some hide it,or loose docs. Others don't let you have documentation even when you ask through the proper pathways because they can reject on the grounds that they feel the documents will cause 'patient anxiety and distress' . It's just lies and excuses.
Anything important is not in my records so it perpetuates the problem. I have documentation that I kept as I could. But as a kid I didn't get alot of it unfortunately. They are trying to sell an untrue narrative and won't let me access my own medical records. I am not on any medication for MH and I know it's just med dics trying to cover their tracks always.
I let a lot slide from the medical negligence I experienced the first stint in hospital as a child. The unlawful use of restraints and no access to basic things and social isolation etc. I had lupus and yet the medical team thought they could make my life worse than it was before hospital
. It's'just anixety'. I have worsening neuro symptoms and lupus issues and they hold records from genetic testing done ten years ago and won't let me access them. Not allowed to see the scans or other things. My seizures are evolving and if the frontal lesion gets 0.4mm larger,then I will need biopsy and removal of whatever it is. Yet they say I'm anxious when I come with real issues and symptoms. That's not taking into account that the two MRI scans don't match up in any way. So who knows what's truth or lie?
My sister has just got access to her documents, she is identical twin, so DNA, genetics is somewhat important and they always referred on notes dually. And is going to try and send me notes of her /my results. As some of my notes lost' are in her record. again shouldn't be but is the case.
I feel a bit like I am drowning and fighting a loosing battle,honestly I don't care if it was MH or any other chronic condition,when will medics treat people like people. Everyone no matter what deserves access to treatment.
lottie