Study seeking UK lupus patients for virtual inter... - LUPUS UK

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Study seeking UK lupus patients for virtual interviews

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK
4 Replies

***We no longer require volunteers for these virtual interviews. Thank you so much to everyone who has emailed me to volunteer, we've been blown away by the response. Keep an eye on the forum for more opportunities in the future.***

Researchers at Duke University in the United States are looking for people with systemic lupus erythematosus (SLE) in the UK to provide their opinions about a forthcoming survey looking into lupus and quality of life. The survey is in development your feedback can help make it better.

Researchers are identifying people for interviews to provide feedback on the survey. If you are selected, you will be asked to take part in an interview that will last 1 to 1.5 hours. The interviews will be with a trained interviewer from Duke University. You will be compensated for your time for the interview.

What are the interview topics?

If you are selected for an interview, you will only be asked for your thoughts on the survey. We will not ask you to tell us about your personal experiences of living with lupus. We want to learn how well people understand the survey questions and how we can make the survey better. The interviewer will also ask questions about you—such as your age, ethnicity, and education.

To participate in an interview, you must:

•Be interested in taking part of the interview, if selected

•Be at least 18 years old

•Be able to read and speak English

•Live in the UK

•Be diagnosed by a health care provider with SLE/lupus

•Have access to a computer and a reliable internet connection

Compensation:

If you are selected to participate in the interview, you will be compensated for your time.

Where Is It?

You can participate from home. All you need is a computer and a reliable internet connection.

When would the interview be done?

If you are selected for an interview, it will be scheduled at a time convenient for you within three days. Interviews will take place within 1 week of you being contacted. You can complete the interview at home.

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Paul_Howard
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4 Replies
Littleandperfect profile image
Littleandperfect

Hi.. yes I would be happy to take part ... we sufferers need to help each other .. I look forward to hearing from you ..

Neriah profile image
Neriah

I also would be happy to take part

Sahil2005 profile image
Sahil2005

Hi i would like to take part thank you

ddgray profile image
ddgray

I’d happily be considered to help.

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