Should I or shouldn't I?

[SueW64]

Hi I am new here...I was invited by GP to have vaccine today (Oxford) and tbh I am so scared that I declined! I said I wanted time to think/research. I have APS, Hashimoto's, Sjorgrens and Osteoporosis. I am terrified I will go into a massive flare or acquire some other problem. Please what can people tell me of their experience? I currently take Warfarin, Levothyroxine, Prednosolene and Duluxotine - sorry if spelling wrong 4am and cannot sleep - pain lol

[Spanielmadlady]

I have lupus,lupus nephritis, sjorgens, hashimoto's PA and lung issues and take immunosuppressants so I'm cev. I had the oxford vaccine 3 weeks ago without any issues bar a headache.many of us have had one of the vaccines now. For me covid would most likely be fatal so my vaccine couldnt come quick enough i had it booked within 5 mins of the text arriving and had it 3 days later .......I'm counting the days until dose 2 when I might be able to come out of shielding and see my daughter and grandchildren.

[SueW64 in reply to Spanielmadlady]

Thank you. The minute after I posted I thought I am being stupid. I'm going to have a chat with my GP with view to book.

[Spanielmadlady in reply to SueW64]

I hope your gp can give the reassurance the need Sue .xx

[Oshgosh]

Perhaps you could seek advice from your GP or consultant. I have auto immune conditions and Interstitlal lung disease. I was very worried about having the vaccine. I left a message for my rheumatologist asking whether or not I should have it . The reply was that I needed to have the vaccine , as if I did get Covid I could be very ill .I decided that I needed to trust the advice. I had the Astra Zeneca a month ago. I had a sore arm and aching joints for 36 hours. Last week I developed a cold sore the first for years. I’m hoping this means I’ve developed some immunity. I’m now waiting for the second vaccine , a m tired of shielding and isolating myself.?

I can’t advise you whether or not to have the vaccine , that’s your decision. I hope this helps a bit . Take care.

[SueW64 in reply to Oshgosh]

That helps a lot thank you. Made me put into perspective. I will phone GP.

[Krazykat26]

Hi Sue 🤗I had the Oxford vaccine last Tuesday..felt rough for a couple of days n I did think that my skin was gonna flare (I have SCLE) but the next day it had calmed down again n I've felt 'fine' since..well as fine as is my normal anyway!!

I'm glad you've decided to phone your GP today..we've all been shut away far too long!!

Good luck n best wishes 🌈😽😽xx

[Chin-up]

Hi Sue, I suffer with Lupus SLE and I'm in remission from kidney disease, I also have a horseshoe kidney so I'm on the vulnerable list for both. I ran it past my kidney consultant before my vaccine appointment. He said it was only a positive thing for me due to me being CEV. To be honest I'm worried if catching the virus would also cause a lupus flare so I was keen on having the vaccine. I was given it on 10th Feb, I was aching (upper body) and tired for 2 days. I also got a big coldsore exactly a week after the jab which I can handle if it's on the path of protecting myself from this virus! After shielding for so long I was worried about there being lots of people at the vaccine location but it was very well organised and didn't take long. I know we are all facing different battles & ailments but I hope this helps reassure you a little.

[Oshgosh in reply to Chin-up]

That’s interesting about the cold sore.I developed a cold sore 10 days after having the vaccine.

I took it as a sign that some thing is working.

I also ached for 36 hours.

I’m feel lucky.

I had my vaccine at myGPs surgery.

Ihad a choice of 2 venues.

I didn’t see anyone.

I went in the front door and out of the back.everything was covered in heavy duty plastic. Ithink they put social measures in for-the CEV.

My husband is in group 6 ,he also went to the local surgery,but he did have to stand in a queue we also felt that the organisation was .excellent.

Hopefully we can now get back to coping with our existing health problems. Take care.