Hi guys. I spoke to my consultant today and he dismissed my light sensitivity as not being part of lupus. Said uncommon?

[F1zz]

I guess I'm questioning this. As he only really seems concerned with joints.

[F1zz]

I feel so lost. I've been on methotrexate since November started by rhuem nurse. I haven't spoken to a consultant in over a year. My first phone app today and he didn't know I was on it. My white blood count is down and I now have to ring his secretary a day after my gp does my bloods again.

[Willow1414]

Dear F1zz

Are you sure you where talking to a ruematologist ? I would question that first , as if not ,he should not be advising on what he doesn’t have a clue about , I would ask him to confirm in writing what he has discussed or advised . for future reference .

🦋❤️

[F1zz in reply to Willow1414]

Thank you. I think I'm going to ask to see someone else.

[Willow1414 in reply to F1zz]

Hi F1zz

Which hospital is this ?

Are you in England ?

🦋❤️

[F1zz in reply to Willow1414]

Yes. Colchester

[flo_IarFachYrHaf in reply to F1zz]

if you feel you can't talk fully to the consultant for whatever reason then yes do ask to see someone else. I did it with gynaecology twice and both times my GP was very supportive

[miccika1]

It depends on what type of light sensitivity do you experience? What are you symptoms to which type of light?

[F1zz]

Artificial, migraine

[CecilyParsley]

I am so sorry Fizz. I do not think some of these Consultants realise the distress, anxiety and confusion they cause with their often flippant remarks. I agree with everything that people have said here find a different Rheumatologist. Clearly the one you spoke to has not read your notes. I wish you the very best of luck. I am waiting to speak to a Neurologist about my auras and kept sided weakness which since lockdown has been almost eliminated which I really think is down to not using shops with bright lighting xx

[tree_shadow]

never heard of anything common about lupus.