Rixtaban infusion : Hey! How is everyone happy new... - LUPUS UK

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Rixtaban infusion

Hannalow profile image
5 Replies

Hey!

How is everyone happy new year !Bought myself

A pill box as that’s how tragic my life has become

Argh! Anyways, I live in dubai now and dr now wants to try me on rixtaban infusions , they are £5000 and trying to her insurance to

Cover , thank god for the NHS , we don’t realise how much things costs !

How’s everyone experience been on them?

Thanks

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Hannalow profile image
Hannalow
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5 Replies
Pickzie profile image
Pickzie

Mine been a good experience

Apricot100 profile image
Apricot100

Hi, i had a couple last year (2019) . They took around 6 months to kick in and the effects started to show in September last year. I was so pleased and happy in september as the results were fantantastic. I was told it could last a few months to a few years. I believe the effects are now starting to wear off and I have an appointment soon.

Sadly my infusions were part of a trial so, although they worked well for me albeit not for a huge length of time, i may not be able to get any more.

I don't remember experiencing any side effects. Good luck x

shareasmile profile image
shareasmile

Happy new year to you, fellow pill boxer!

I had my first infusions of rituxan last month and have high hopes that it will control my swelling and random joint pain. I live in the U.S. and just received a bill for one of the two treatments-- almost $60,000! (£45800?) That's nearly 3X my annual wage. Thankfully, I have insurance that covers most of it.

Forgot2mention profile image
Forgot2mention in reply toshareasmile

Thank god we have the nhs. My granddaughter has come home from the hospital with 40;packets of tablets, and tha’s only for a month. Hope your infusion works, my granddauighter has had 2 , so now it is just a waiting game

Princerogers777 profile image
Princerogers777

Wanting to put me on it im scared, either this or benlysta , will see

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