Symptom Query: Hello all, I have heard that people... - LUPUS UK

LUPUS UK

31,744 members28,102 posts

Symptom Query

ScottishGirlGla profile image
4 Replies

Hello all, I have heard that people with Lupus or autoimmune issues are more prone to chostocondritis or other types of chest discomfort, and also haemangiomas ( benign tumour made up of blood vessels). Was wondering if others have any experience of this or this has been part of getting their diagnosis ? Thanks in advance 😳

Written by
ScottishGirlGla profile image
ScottishGirlGla
To view profiles and participate in discussions please or .
Read more about...
4 Replies
tiredmum profile image
tiredmum

Hi there,

I suffer from a lot of chest pain. Especially when I am under the weather. I get pleurisy a lot. Also I have either sprung or cracked a rib three times now , twice due to coughing the third leaning over the settee and I also remember another occasion where I rolled onto my wheat bag in bed. It’s no fun. It gets so bad I can’t lay down, have to try and sleep propped up.

Hope you don’t suffer too badly.

ScottishGirlGla profile image
ScottishGirlGla in reply to tiredmum

Thanks for the reply. I have suffered from costochondritis since I was nursing so maybe 20 years. It seems to come in cycles a lot of the time, settling down for a while and then can present for several weeks. I never put two and two together before until I came on the forum but it seems that its potentially just another symptom that I've been suffering with that points towards an autoimmune diagnosis. Now to get taken seriously at my rheumatology appointment WHEN I get it. Sorry you are suffering too

Kazunlocked profile image
Kazunlocked

Hi, I have diagnosed with S.L.E. 8 years now. I do get 7/10 pain in my clavicle. Have thought chostocondritis previously though not diagnosed as such. Was essentially told to grin & bear it. I did eventually get significant relief with Acupuncture treatments over 2 months. I will be interested to read what others may post on this issue. Best wishes to you.

ScottishGirlGla profile image
ScottishGirlGla in reply to Kazunlocked

It was a physio that told me thats what it was when I worked in a hospital as a nurse some 20 years ago. At that time I put it down to dealing with patients and took anti inflammatories as I needed to. It seems to have worsened in last few years and especially the last year. I actually got admitted to A/E last year as I had a panicky GP. Being on the forum it just now starts to make complete sense. It seems to affect the left side mostly but both sides a lot of the time and with pain under breast area too occasionally. Getting a diagnosis is an uphill battle as even though have anticardiolipin antibodies and a slightly positive ANA my inflammatory markers are borderline so my GP won't take it seriously. I am waiting for a Rheumatology appointment so we will see what happens then . Not really a fan of acupuncture but glad it gave you some relief

You may also like...

Diagnosis query

with SLE without a rash? I have the markers in my blood. Every other symptom but the rash and...

query diagnosis

urine and repeated more blood tests same ones I have had many times before , I have the rash,...

Query pins and needles in lips and tongue

this is the forum I should even be on. I had a blood test August which shows positive ENA antibodies

Diagnosed sjogrens, hypothyroidism, query lupus..

better health. I have now found out, I have thyroid antibodies too. I have also been told ANA is...

Query on shielding

Hi I’m looking for advice on shielding I have lupus arthritis asthma epilepsy tachycardia and...