Hey guys ❤️
I have found my skin is burning in the sun ☀️ not going red apart from my face but just getting really quite hot any ideas to why this is I never got this before all this started xx
Hey guys ❤️
I have found my skin is burning in the sun ☀️ not going red apart from my face but just getting really quite hot any ideas to why this is I never got this before all this started xx
I’m not sure the “why” of it , but I’m sure others can tell you!
My experience is of skin burning very easily and I have a few selfies of the butterfly rash to show to rheumies. Other than than I have very pale skin that burns and won’t tan, so I’ve long been in the habit of using sun protection and staying in the shade. Since becoming ill I use an SPF50, and have been told to do so year round. I wear light cool clothing that shields me from the sun to an extent, and wear a hat.
Others have mentioned rash vests, but I don’t know a great deal about them.
Sometimes my face feels burning hot, and then I use a Vichy /Avene or other cream that calms redness. This can happen at anytime of the year, and I use the Avene Eau Thermale Spray.
At my Rheumy appointment today the consultant thinks I have erythromelagia (sp) which can takes up residence when my feet are not otherwise freezing. Eau Thermale Spray is a cooler and easy enough to use in the middle of the night before sticking my feet out of bed!
None of this might be helpful, but I’m sure others will be x
Are you on HCQ? Sun sensitivity is a known side effect. Other meds, including over the counter NSAIDs also can cause photo sensitivity.
Yes I am low 200mg
How are you x
Did the sun sensitivity begin after you started HCQ ? If so it could be that if before it would support connective tissue disorder too. It is so hard to tell sometimes what is the cause but what ever is causing it do try and stay safe in the sun to avoid worse flares.
I am doing well thank you. I hope you start to feel better soon too. Xo
Hiya. I get that burning feeling on my face and feet . I posted a question about it here yesterday and got loads of really helpful responses that might also be relevant to you? Not sure if you saw it? Don't think I can link to it but it was called "Burning face" 🙂 🔥 How are you doing? Hope things are going ok?
x
Thanks mate il have a look sorry for the late reply
Yeah not to bad not any further along just plodding along as you do 😂🥴
How are you xx
Before being diagnosed with SLE I could go out in the sun without any trouble. Unfortunately, since then I developed sun allergy and I either burn or come out in spots! My rheumy/renal Drs advised (or should I say, insisted) that I never to go out in the sun without high factor sun cream, I always need to wear a hat and have arms covered!
I ignored the advice a few times and paid a high price, so now I always cover up. Lupus+sun doesn’t seem to go together! Keep well xx
I know your pain. ❤
Thanks frosty1960
Sometimes that’s all we need to not feel alone
How are you sorry for the late reply xx
Hi Buckley, I'm looking forward to autumn cloudy leaden skys not so much of a job to go out.
Still have to sunblock but not so heavy duty, also lets my skin recover. Its been a progressive thing for me to point i am at now where even 50+ doesn't really help as you said hats, long sleeve tops i look for spf clothing any little help to get out but more or less its indoors in the main over summer. I hope you have more joy.