Pin prick blood spots on insides of lower foot from heel to toe. Having a run of skin issues of late 🤨

[Lisalou19]

These are super duper tiny. At first I actually thought I had black heads in my feet 🤮

But they are blood spots. Deffo a first for me this one. My skin is screaming at me lately, I can’t say I feel at my best but I certainly don’t feel at my worse.

Anyone share this symptom or maybe shed a little light? My feet are painful when exposed to heat changes, could be the cause maybe.

I’ve had to zoom in on photo as they are really small. Even the most smallest of dot looks like blood. I’ve tried squeezing and washing they still stay !!!!!

[Hidden]

Yes I have identical - occasionally quite large dark petechiae but very frequently these tiny guys. They have disappeared since steroid injection and my legs are usually exposed just now so definitely not sunlight with me. UTIs and times of extra blood in my pee often coincide. None the wiser I’m afraid and I was told by CTD dr to just ignore. X

[Lisalou19 in reply to Hidden]

🙄 ignore. I think they are quite daunting to look at 😣

Feels like a skin disease. It just doesn’t sit right for me x

[Hidden in reply to Lisalou19]

No me neither. My dermatologist thinks I have autoimmune skin disease but, with my nearly normal ENA panel 🤷🏼‍♀️

[Lisalou19 in reply to Hidden]

I 100% have a skin disease!!!!!! And I think I will only get answers if they admit me and see the changes.

My skin sheds every 3 days now. I’m becoming so dry and crusty.

My face is like snakes skin. I have just massaged my feet in the attempt to disperse the blood dots/spots/pimples/craters what ever they are 😂x

[Hidden in reply to Lisalou19]

Well I too know this isn’t normal. Sometimes it happens with medications as a follicular petechiae for me - for eg Nifedipine with Metoject gave me what a derm diagnosed as Scurvy. However the smaller spots like yours always come with pain flares.

However I’ve vowed to myself that I’m just going to document them and bide my time - and next time i get really sick and have these spots I’m going to get tough and request an out of area referral to Glasgow to see the only Sjögren’s expert here. Xx

[KayHimm in reply to Hidden]

Other than my autonomic neuropathy, my autoimmune looks “dandy” by the lab reports. On occasions I get fatigue, nausea, my “weird head” stuff but never fever in later years. Most of the time I could get a prednisone prescription from a friend but can’t now that he is retired. I have saved so many vacations, particularly sunny ones, from low-dose, « non-approved » prednisone. I got both my rheumatologist and neurologist to agree that I could take 5mg for ten days or so at my discretion. I made it clear that I don’t care what the labs say. I know my symptoms 🥊. The neurologist explained why it likely helps my head. You can’t know how good it felt to have someone acknowledge that it is not just the « uplift » of prednisone making me feel better. Thought of you and how the doctor did give you the steroid shot. It helped, right? Is that not diagnostic? You might want to think about 5 mg prednisone as a way to pull you out of the flares.

Just 🤔

Xk

[Hidden in reply to KayHimm]

Hi Kay. Not wanting to hijack LL’s post but my rheumy and neuro have so far refused to consider Prednisolone. I was on it for 6 months in 2015 and shorter courses and jabs for decades for allergies and more recently for inflammation. But the vascular dr was fiercely opposed to my suggestion of a low dose and told us and his attending medical students that everyone feels better on steroids! I actually came off them because they caused me weight gain with gastritis and palpitations letterly.

But overall I have always been much better on them. I will ask to see my rheumy and really drive the point home if and when I flare up again in my peripheries or skin.

[KayHimm in reply to Hidden]

I thought I was posting on your post. Will respond there

[Hidden in reply to KayHimm]

Okay but I was going to delete the skin photos as they were just to show Lisalou how similar mine are and tell her my dermatologist thinks they are some sort of vasculitis

[Hidden in reply to Lisalou19]

Ps I’ll briefly post a collage of mine for you just to show you how identical mine are in case it helps.

[Lisalou19 in reply to Hidden]

My diary of skin complaints this week is massive!!!! I don’t think I can ignore these along with other blood spots I sometimes get, usually on my arms.

My feet get extremely dry too, like uncomfortable dry. I wonder if I have mechanics feet as well as my palms now. X

[Hidden in reply to Lisalou19]

I just posted my equivalent for you in case it helps to know that my dermatologist thinks they are some form of vasculitis. But my CTD team disagree and think they are possible allergy to antibiotics. Yet I’ve had 3 courses this year and none have coincided with the flares or rashes

[Lisalou19 in reply to Hidden]

Sorry I dozed off. I hope your photos are still there.

I’ve had 2 rheumatologist suspect vasculitis, but no bloods to support the diagnosis. X

[KayHimm]

Sorry, Lisa. I responded to the wrong post. I definitely see those red spots, though. I hope someone can tell you if there is anythjng in particular to watch for.

Xk

[Lisalou19 in reply to KayHimm]

Just sitting in my garden watching thunder and feeling the rain ☔️.

I find these weird as some of them are so tiny, it’s like blood cells sitting on my skins surface. I’m an odd one x

[Lupiknits]

I’ve got them too. They get worse in any temperature of water. Sorry I missed your post.

[Lisalou19 in reply to Lupiknits]

Looks like I’ve been prodding myself with a pin !!!! X

[Lupiknits in reply to Lisalou19]

It doesn’t really matter if I casually say “ Yes, I have them” because it’s your body, and what feels right for you. Please see a doc if you’re worried. Remember my middle name for myself is: “It’s just stress”. Definitely not recommended x

[Lisalou19 in reply to Lupiknits]

🙁. My middle name is “I don’t want to be a nuisance “.

Will see how I go over this weekend. I think I’m fed up with the blank looks I get so I keep most of it in. The only place I can be open is here 😉x

[Eternity6]

I’ve had these blood spots for over 20 years red pin prick blood dots I’ve got them on stomach n legs

[Roarah]

Do call your GP, new presentations should be evaluated. If you are having nosebleeds, bleeding gums, very heavy periods or blood in urine you should go ASAP. Are you on aspirin or ssri's, if so a small number of spots in a small area is often a side effect of the medications ' blood thinning properties.

[Lisalou19 in reply to Roarah]

I’m so tired

My gums are bleeding bad. Not on any aspirin

[Roarah in reply to Lisalou19]

I think you should have a cbc ( complete blood count) run not immediately but soon. Rule out anything serious going on with your platelet count. Better safe than sorry when bleeding is a concern. Gums bleeding could be from other issue like gingivitis, but with the feet and the gums I think you should run it by you GP. It hopefully is nothing.

[Lisalou19 in reply to Roarah]

I’m going to sit on it this weekend and hope it passes.

I’m just thinking all of this is surely impossible . Constant pins and needles too but MS has been ruled out x

[Roarah in reply to Lisalou19]

Waiting is fine. In March, I am on antiplatelets and warfarin, I had it happen all over my body I called my hematologist who could not see me for a few days so it is usually not a sign of imminent danger I assume. They just wanted me go for a CBC, because there are treatments if your platelets are dangerously low. My blood count was slightly low but not low enough to treat with plasma so even a slightly low platelet count can cause small vessel bleeding. Mine has resolved without any changes in my medicines so it was chucked up to " one of those things" .

There are many things that can lower platelets, infection, autoimmune, blood disorders, medicines, vitamin deficiency and even stress. Hopefully you just have an infection and it will pass.

[Lisalou19 in reply to Roarah]

It does seem to pop up randomly and then disappear.

I think it’s a chapter to my story but so frustrating that it comes and goes, it would be more helpful to me and my doctors if it could just stay x

[Jmiller623]

I get these too. New for me. I have them all over my body but moreso on my arms, abdomen and legs. I thought it was an allergic reaction and worse when I was on MMF/CellCept. They look like small petichiae. Mine actually turn brown after some time if large enough. Have yours ever done that?

I must say this is a mystery symptom and I’m not fully sure what’s going on here but they do bother/worry me.

[Lisalou19 in reply to Jmiller623]

Yes they are worrying me . They are so tiny like I’ve been poking myself with a needle. I’m keeping an eye to see if they change colour.

I’ve tried scratching them off but they don’t go 🤷‍♀️X

[Jmiller623 in reply to Lisalou19]

Same here. I think they may be petichiae aka little little blood blisters. Worse when my BP is high. I turn red as a beet. I see dermatology on Aug 9. Will ask them what they think. Been breaking out in all types of funky rashes these last couple of weeks.

[123MrsG]

Hi Lisalou, I also get these tiny pinprick blood spots on the outside of my feet and ankles. I too was told it's probably a form of vasculitis and is not doing any harm. But every time I get it I still worry that something is not right. For me it is a sign that I’m in a bit of a flare. And I usually have other stuff going on when the rash appears, like more pain and fatigue. It is a relatively new symptom for me. It started about two years ago. But actually I haven’t experienced it since I had my very first steroid shot in May. I was only diagnosed last October but I’ve probably had lupus for 20 years given the symptoms I’ve experienced over the years. I’m very lucky that I don’t seem to have any organ involvement.