In the land of the 🧚🏻‍♀️

[barbdockeray]

Hi everyone I have a query . Just lately I have been feeling a bit in the land of the fairy’s . Totally not with it carnt remember simple things . Going into a daze if I sit to long or I am not concentrating. Also feel very low . On the verge of paranoia worrying over everything. Which I normally don’t bother . I have lumpy hands bruised legs and have had lumps removed from top delicate areas and also bottom very delicate areas I know people are going to say go to the doctors. But I know the answer LUPUS related.!!!! Again. Hope you have any helpful ideas 💡, Barbara

[suzannah16]

sorry no ideas but it still shocks me how many parts of us get affected by lupus, it really can reach anything. hope you find a solution XX

[panda2]

You sound in an awful way, barbdockeray. When spontaneous things just happen to the body like that, we are at our wit's end to know what to do. Lupus does affect so much and it just is too much sometimes. If you've done all you can to physically help yourself and the GPs have and you've got your regular appts set for the future, then maybe it's okay to let yourself feel low, to worry about your bruising and the lumps and feel a bit paranoid. And especially to do what you just did -- post these feelings here. Something gets relieved when we share what we are feeling; and allow ourselves to grieve the loss of our old selves.

I know that's not really helpful in any tangible way, but hopefully a help to know we're reading your posts; and empathising greatly. And, usually, our old selves will pop back up time and time again. : )

Panda x

[Krazykat26]

Hi barbdockeray

When in the land of the fairies I tend to rest a lot..listen to relaxing music or meditation techniques..when I think about anything I have to write it down..try not to worry too much n resistance is pretty much futile..I hope u feel better soon xx

[eekt]

I have a kind of coming-and-going in the sense I'll pick up doing things I started doing a few days ago and be surprised that it's been so long...and it's not just the ironing! 🤣 No idea what's going on since I live along...but I'm still functioning! 🤗 🤩 xxx