I posted a while back about a constant pulsating feeling in my upper jaw, choking episodes at night, difficulty swallowing food in the day and experiencing a sensation of fluid on the scalp. I received some very helpful replies from you guys and thought I’d post an update as some of you were interested in the outcome.
Because of my UCTD symptoms (fatigue, joint pain, muscle stiffness, lack of balance, dizziness, memory loss, headaches, low cognitive skills etc) as well as these head symptoms, at a routine dental check, the dentist referred me to Maxillofacial clinic at my local hospital. The consultant diagnosed me with Giant Cell Arteritis on my symptoms alone and said that as I am approaching 6 months on HQC, the inflammation in the arteries should reduce and the pulsating feeling along my jaw should start to abate. If it got worse very quickly, to go to A&E straight away and get steroids. I need to mention this at next Rheumy appointment which is in January and he may well start me on steroids anyway. The good thing is, that since being diagnosed with GCA, in the last week the choking/swallowing problem has gone! So perhaps I just need to wait for the HQC to really kick in and reduce the GCA symptoms...
I had never heard of GCA before and have now learnt that it is an autoimmune condition. I wondered if anyone else has GCA in addition to their Lupus/CTD/Autoimmune disease? I have done a bit of reading up on GCA and it seems to be closely linked with PMR. I know that there are a few PMR people on this forum and wondered if any of you have GCA aswell?
Any suggestions would be gratefully received with regards to how best to manage, what to expect, what to look out for etc.
Thank you xx