Sildenafil

[luupysue]

Has anyone been prescribed sidlenafil for treatment of Raynards, if so what's the side effects and most importantly does it make a difference?

[Ianrussell69]

Hi I believe salidaphil is viagra I am at present jumping through hoops to get this prescribed but I have to try all the alternatives ei ramipril nephedapien ect of Wich dose not work or give me migraine 😠🤞I’ll be able to try it soon but knowing my luck it will be summer

[luupysue in reply to Ianrussell69]

I keep thinking anything is better than the painful splits and the chilblains so might just try it and forget the side effects

[Ianrussell69 in reply to luupysue]

There are posts on here about salidaphil but I agree some side effects may be better than chapped split hands

[Hidden in reply to luupysue]

For me it caused nose swelling, severe bleeds and headaches. It turns out that we have erectile tissue in our noses and for me, with a very sore dry nose and only mild Raynaud’s as it turns out, this was unacceptable.

We are all different and I believe, from the Scleroderma & Raynaud’s HU - that for many there its been a hugely beneficial medicine. Well worth trying I would say.

[Kevin53]

It is amazing how these drugs can assist in so many areas. Unfortunately one solution doesn’t work for everyone. This is where the biological markers will hopefully begin to find the correct solutions for all.

[DJK99]

Hey Sue - better late than never replying to your post on Raynauds. I have it v bad and was put on Nifedipine which has been fabulous! Totally changed for the better - I can get in the house with my keys now (previously couldn't feel them in the bag or to use when having an attack.. not great in the freezing cold wind... or even in the luke warm wind!). Did you ever get that med? I totally recommend... obviously as I am intolerant of many meds (hydroxy choloroquine was dreadful... now on Methotrexate.) Anyway I had racing heart with the full on Nifedipine but no probs with the er MR(?) one - it is a slow release through the day. I have Atrial fibrillation and leaky aortic valve so guess the racing made sense as is a side effect. So you could have the slow release if need be. Anyway. I came across you as off sick today (again) with the SLE... my lower back spasmed again in the night and all my joints flared... plus temperature (although therm say 35.8????) and headache/brain fog and slight slurring etc.... so can't do much in my line of work (or any!). V tearful in the night "stuck" in one position until I managed to get some ibroprufen and para's into me from the bedside table... if weren;t there I dread to think! My manager not chuffed but they know all about it and Occ Health said this would happen... Anyway. Yet again... I am worrying about how long I can keep this up... I work in social work so it's hard. yesterday was stressful and bang here I am with the result. I knew it was coming as I was toast even before the end of the day even though working from home...... So I read your post about benefits and the fun and games you've been having. Not. This was years ago... I was so sorry to read your health story.. Hope you are OK? Wondering how things have gone for you since... no worries if you don;t want to respond. You had a lot going on then so I can only hope your situation is much better for you now... All best , Deb