February's Topic of the Month - Coping with Headaches & Migraines

[Paul_Howard]

Our blog article for February about coping with headaches and migraines has now been published.

lupusuk.org.uk/headaches-an...

Thank you so much to everybody who submitted their tips and experiences to help us write it.

[MsGelfling1]

I developed migraine headaches in 1975. For many years I suffered from these headaches unable to convince the doctors the pain was real. In 1985, I saw a chiropractor that adjusted my neck and the headaches decreased in intensity. In 2003, I got extremely sick (turned out to be a massive MS exacerbation). I was diagnosed with MS within 4 months. My migraines went away and have not returned since. Were the migraines trying to tell me years before the MS diagnosis that MS, Lupus, and RA were the real causes?

[Paul_Howard Partner LUPUS UK in reply to MsGelfling1]

Hi MsGelfling1 ,

Thank you for sharing your experiences. Did the migraines go away after you started any treatment, or purely following the news of your diagnosis?

[Elfie1]

Hi Paul thank you so much for the headache and migraine article. I've had headaches and migraines for a very long time now (I have Hughes syndrome as well) .I'm on Tinzaparin injections twice a day and hydroxychloroquin.The migraines seem to be getting worse although less frequent .I'm totally incapacitated can't keep fluids down .Painkillers don't help and Stemitil doesn't either,in fact its got so bad that I hate making arrangements . After reading this article I'm wondering whether to request a trial of oral steroids .I also got aseptic meningitis after three infusions of iv.immunoglobulin .Just wondering if anyone else has had any relief from steroid treatment .Thanks Elfie

[Penelope-Mary]

Terrific blog Paul, thank you.

Penelope-Mary