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Toe nails, changes & horizontal lines???

Toe nails, changes & horizontal lines???

I must apologise for the photo. Feet are not pretty at the best of times but mine aren’t good at all at the moment.

I have SLE, mild raynauds, mild Sjögren etc.

My little toe nails have been yellow, thick and crumbling for a long time - before my lupus diagnosis.

I’ve managed to hide them by painting them in the summer when I might wear sandals.

But recently after having a small bout of athletes foot I’ve noticed some of my other nails are going yellow, another has thickened and my right big toe nail has lines on it, horizontal lines and ridges.

I’ve never noticed this before.

I’ve bought a tea tree anti bacterial toe nail treatment from Holland & Barrett and am using that twice a day.

I’m already thinking I won’t be wearing sandals this summer. My toe nails are too unsightly. I often wear trainers during the summer anyway, for comfort & to cover my feet from the sun, but wearing socks and shoes all the time doesn’t help fungal infections.

Is it significant? Is it just being on 3g of MMF and therefore being immune suppressed and more susceptible to fungal infections? Although I’ve had athletes foot in the past too. Do fungal infections cause horizontal lines and ridges?

Looking forward to hearing your thoughts and advice.

Thank you

Wendy

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Hi Wendy not sure about fungal infection, but I always associated ridges & lines in my toes a sign of my not taking care of myself ie illness or lacking something in my diet. It can also be associated with dryness, eczema, sometimes it can happen in your fingernails. Ridges can grow out overtime if everything is back in balance... Not sure about the yellowing, sounds like another sign of not happy toes 😕... Did you damage it? Or do you think it is associated with the fungal infection? If it doesn't go or gets worse may need something to help with combating fungus.... Oh what a topic..☺ ml

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This lupus is glamour all the way! 🤣

Thanks for replying. You might be right, it might be just something missing. But I do take supplements including a multi vitamin for hair, skin and nails and my diet is pretty good.

I haven’t injured them, banged then etc.

I think vertical lines can develop as you get older and are nothing to worry about.

But horizontal are different? But I’m no expert.

Think a GP appt re toes and tennis elbow might be on the cards or a phone call to the podiatrist at our local hospital. I’ve been there before and have the number for the answer machine - ha ha.

How are you?

Wendy x

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How about more gelatin in your diet, or is that an old wives tale? Yes this forum brings out the glam side of us 😂 ... OK my end, glad I not doing more hours, sad that I can't ... You know.... Been nice in the studio & getting on with repairing & listening to nice music.... Still building up loss muscle I seemed to have left behind over the summer, slow doing this... How about you? Keeping up with all those lovely young ones? K was off to uni interview today, unofficial offer to the place she really set her heart on, happy day😄... ML

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Bless you. A daily struggle. xx

My tennis elbow is still a nuisance and my wrists are occasionally painful. Yesterday wore my elbow and wrist support.

The children are keeping me busy, as always, youngest's 10th birthday fast approaching! My baby, or not so much anymore.

Great news for K. SO pleased for her. She's worked hard for this and deserves it and more.

Have a good day.

Wendy xx

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Off the subject, but here’s a link to a local newspaper report today, about possible Withybush closure, both Simon Hart MP and my AM comment.

tenby-today.co.uk/article.c...

Wendy x

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Hi Wendy,

I too suffer from most horrendous nails and regularly go to a clinic local. Whilst I was there I was told to use Vick Chest rub on my feet. I thought how ridiculous but after a while they have cleared up. Give it a try you have nothing to lose. It does take a little while though, give it chance.

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Thanks for the reply Lesjames.

Very helpful. Now I have bought this tea tree stuff from Holland and Barrett I will keep using it for a few weeks to see if it helps at all, but the Vicks is something that I keep in the house and will try if this doesn't work.

Thank you

Wendy

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Hello! I was going to write this same response! My daughter was a high school athlete and struggled with foot issues. Her doc told us to use Vics and it cleared her feet right up! It's cheap and very effective! I have ridges in my nails and was told they come from connective tissue disorders. The worse my issues get the worse my nails get..... They are starting to curl now 😣

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Thank you for replying. Vicks sounds like a winner! Sorry to hear about your foot issues progressing! No part of our bodies are spared, are they! X

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No

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Heck to the Vicks chest rub idea - I’m going to try that!

Wendy the horizontal lines are called Beau’s lines I think - most commonly associated with psoriatic arthritis/ PsA. Do you have Psoriais at all? It’s possible to have PsA without the psoriasis - my cousin has this and it’s taken years to diagnose - extent of her arthritis is shocking and she’s younger than me.

But otherwise my nails look the same and add some corns under the nail bed and some drilled holes to remove and they really aren’t nice to behold often. My great podiatrist says that other causes of yellowing and Beau’s lines are severe illness and chemo- type medications. The yellowing has never been fungal in my case so I guess it’s just that my skin is very dry (Sjögren’s) and I’m an eczema baby. The ridges reflect my Sjögren’s flares I think.

As my feet often look and feel as if they belong to a dead body re icy cold neuropathy Raynaud’s and livido - I guess I have to expect my toenails to reflect this state of affairs!

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Hello TT

Thanks for your reply. Very interesting.

I had eczema as a baby and other allergies etc followed at a young age. I've always had dry skin. But don't remember ever being told I had psoriasis.

The skin on my feet is dry, but it has been a lot worse in the past and cracked and bleed in various places with extreme dryness in the summer months when exposed in sandals - pre diagnosis.

Anyway, here is part of my reply to Paul below, re my contact with podiatry today.

The Rheumy Nurse had told me that I could just call them for an appointment.

Unfortunately that isn't the case.

I have referred to podaitry before and saw a lady re my hyper mobility/slightly flat footedness / bunions.

But apparently that was over 2 years ago and so I am no longer on the list.

She told me that I would need to be referred by Rheumatology again. I groaned. With me not being offered an appointments I was no confident about this.

I told the lady I have been told by Rheumy Nurse I could just phone and that I have lupus and have changes to my nail that I wanted checked. She re-iterated that I needed to be referred again.

Furthermore she said that the lady I saw before wasn't a general podiatrist, she specialised in Rheumatological Illness Podiatry. She has since retired and no one has filled her place. So I can see a General Podiatrist but she didn't think I'd be able to see a specialised Podiatrist.

I didn't give up and eventually she told me I could self refer - why didn't she say that in the first place!

Within 5 minutes she had emailed me the form and I have completed and emailed it back.

She gave me no idea of time scale.

So we will see what happens.

A general podiatrist is better than no podiatrist, surely.

In the press this week, there is plenty of talk of the Health Board closing Withybush Hospital and therefore Pembrokeshire as a county will have no hospital at all.

Wendy x

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Well it’s no consolation for you but it’s a pretty poor state of affairs for all of us these days re chronic stuff and the NHS.

I only see rheum yearly with vascular dr in between and neuro yearly too - really not enough. But I have a great oral med consultant and gastro and optometrist, OT. And I also have rheumy trained podiatrist - whom I used to see under nhs on island where he’s from - but they sacked him from NHS because he has a private practice in Edinburgh and no one wanted to see their ordinary podiatrists as he was so good and was linked to do stuff such as steroid injections into feet. So now I see him as and when I need to for £32 for half an hour. He’s a star pod and knows about so many things that I’ve never bothered asking for a referral since we moved down here as I can see him usually at a few days notice.

But the thing that seems so bad for you is that you don’t have access to even one decent NHS consultant for all this stuff?

A dermatologist could probably assess your problem nails better than a general podiatrist.

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Thanks Twitchy.

There seems to be a huge shortage of everything in the NHS. Rheumatologist. Podiatrists.

A dermatologist. There isn’t one of those either. 😂😂 Have to laugh, otherwise you’d cry.

X

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I know I keep trying to add this to my comment but numb fingertips and HU APP on iPad not a good combo lol!

What I wanted to add is that your toes look very dry and scaly . To me this shouts of your underlying Sjögren’s but hey that’s not rocket science. Someone on the RA HU said their tongue was as “dry as Ghandi’s flip flop”and I think that sums up Sjögren’s and it’s impact on the entire body including nails and toes! X

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I saw a dermatologist for my nails and the only medication she could give me, she warned could be life threatening for me. She told me to check the ingredients. I did and she was right it contained caustic soda - I wouldn't dare put that in my gut. She suggested nothing to put on them, so I am using tea tree, but have to be careful to dilute in a base oil because any on my skin causes blisters.

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Every time I read how nearly impossible it is for people in(I guess the UK?) I feel so lucky..in spite of Trump!!! to live in the US..getting an appointment is NEVER a problem....I feel so awful for all who struggle with AI..or any condition and can't be seen by dr...

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Thanks

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Hi Wendy, I share you same concerns. I am off to Withybush in a little while. There is a paper going around about Rheumatology in Wales a bit premature I think. We should probably wait to see what is left of Glangwili, Prince Phillips and Withybush, before we comment on current treatment

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I didn’t realise you were Pembrokeshire too. Did you know we have a support group and our next meeting is on Saturday 3rd Feb? Kevin Weston the Chairman of Lupus UK is attending. Wendy

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I live in Newcastle Emlyn about 1 and a half hours from Withybush. To attend a meeting would lay me out for a couple of days

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That’s such a shame but I do understand. We meet in Crundale Village Hall, just outside Haverfordwest.

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tenby-today.co.uk/article.c...

Re Withybush potential closure from local press.

Wendy

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Sorry to say I can't imagine that you will get a quick referral, podiatrists are pretty backed up too. Too bad Lesjames can't join us, not sure there any WiFi in the hall to set up a Skype session, unlikely. Maybe future meeting...

. Youngest 10 wow, teenagers just around the corner.... New phase, hopefully a good one, which I believe is possible to have nice teenagers (thank goodness)... Looking forward to the meeting... ML 😃

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Interesting, my Consultant has just done bloods for PsA. No markers are ever found, even when my Gall bladder was riddled with it when they took out.

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As far as I’m aware there are no bloods at all for PsA - apart from sometimes inflammation markers are high? The way it’s usually diagnosed is through X-ray/MRI and ultrasound and family history of Psoriasis. It shows up in X-ray differently to RA or Osteoarthrotis I believe.

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Thanks

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Hi Wendy39,

If you haven't seen it already, our blog article about caring for your nails may be helpful;

lupusuk.org.uk/nail-care/

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Thanks Paul.

That information is helpful.

I notice that mepacrine can make your nails yellow (makes sense as it can have that effect on your skin and urine - the tablets are extremely bright yellow).

However the thickening and the ridges are something I would like to get checked out properly.

I have today telephoned podiatry at my local hospital.

The Rheumy Nurse had told me that I could just call them for an appointment.

Unfortunately that isn't the case.

I have referred to podaitry before and saw a lady re my hyper mobility/slightly flat footedness / bunions.

But apparently that was over 2 years ago and so I am no longer on the list.

She told me that I would need to be referred by Rheumatology again. I groaned. With me not being offered an appointments I was no confident about this.

I told the lady I have been told by Rheumy Nurse I could just phone and that I have lupus and have changes to my nail that I wanted checked. She re-iterated that I needed to be referred again.

Furthermore she said that the lady I saw before wasn't a general podiatrist, she specialised in Rheumatological Illness Podiatry. She has since retired and no one has filled her place. So I can see a General Podiatrist but she didn't think I'd be able to see a specialised Podiatrist.

I didn't give up and eventually she told me I could self refer - why didn't she say that in the first place!

Within 5 minutes she had emailed me the form and I have completed and emailed it back.

She gave me no idea of time scale.

So we will see what happens.

A general podiatrist is better than no podiatrist, surely.

In the press this week, there is plenty of talk of the Health Board closing Withybush Hospital and therefore Pembrokeshire as a county will have no hospital at all.

Thanks again.

Wendy

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I'm glad that you've been able to self refer - hopefully you won't have to wait too long.

Keep us updated about the hospital closure, that sounds very worrying.

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Hi Wendy,

I don’t have this but one of my sons does. He has autoimmune alopecia and when he’s had a period of hair loss his nails become all ridged, lined and pitted. If his hair doesn’t grow for a while then his nails also don’t so they get worse as they also get increasingly damaged and the damage doesn’t then grow out. I presume yours are still growing? Fortunately being a 10 year old boy he is not bothered by the hair loss or the nails!

Do you have hair loss with the lupus? I do but more just all over and little patches of loss whereas my son loses large circular patches then all his head/ body hair sometimes . I think the keratin in hair/ nails is the same and autoimmune conditions can affect both?

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Hello. Thank you for taking the tine to reply.

Yes, I get hair loss - small patches but enough for me to spot them and I know when I’m losing quite a bit. We have wooden floors and my bedroom floor can look like it’s got a carpet of my hair. Hair thinning too.

The hair thing has been happening for a long time now but I’ve never had the yellowing and ridges on my toe nails.

Thanks again.

Bless your son. I wish you both well.

Wendy x

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Hi Wendy, I've got similar toe nail issues and have recently been diagnosed with Lupus and Sjogrens. My young daughter got me painting jojoba oil (can buy it from Amazon) on and around my nasty toe nails and remarkably it has worked after two weeks. Worth trying.

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Thank you so much for replying. Interesting re the lupus and sjogrens. I have both too. Did your nail issues form part of the diagnosis? I might have to try jojoba oil, as two weeks is amazing! On top to f all of my physical blemishes (varicose veins etc) and hiding my skin from the sun, I only show my face, hands and feet - I can’t handle ugly feet too! Sounds silly but it’s been one thing to cling onto - painted toe nails in the summer. X

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