Shoulders and neck pain : I have a terrible... - LUPUS UK

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Shoulders and neck pain

Tulipano profile image
8 Replies

I have a terrible shoulders and neck pain. Plus my stomach does not feel great. Pain around kidney area and my chest feels tight too. I could sleep all day. Sorry for moaning but I hate feeling like this.

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Tulipano profile image
Tulipano
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8 Replies
mcglada0 profile image
mcglada0

I’m so sorry that you are having such a bad time. I think the relentless pain makes us feel extremely tired. You are not moaning - you’re just saying how things are and we can all relate to this. Try to rest and when you feel a bit better maybe a few gentle stretches. It’s grim but it will get a bit better. Xx

Mandypandy1969 profile image
Mandypandy1969

feeling really jelly like all over today. been off hydroxy for almost 2 weeks as making me worse. waiting for rheumy appointment phone call tomorrow. neck, back, shoulders always uncomfortable.

mcglada0 profile image
mcglada0 in reply to Mandypandy1969

Hope you get something positive from you appointment tomorrow. Back and neck pain really drag you down. Hopefully you will be given something to ease the pain. Thinking about you. Xx

Mandypandy1969 profile image
Mandypandy1969

thankyou. I am wondering if I have fibromyalgia as hydroxy did nothing at all but make me worse. I have been feeling really jelly like and light headed today. I am driving myself mad as not been in any medication for 2 weeks.

mcglada0 profile image
mcglada0 in reply to Mandypandy1969

It’s so hard knowing what to do/ take or not do/take. I find pregabalin helps me sleep 💤 and keeps me a bit calmer. Tramacet helps with the Odin but I only take a small dose late morning and evening. All other meds that I’ve tried have had horrible side effects. It’s my buttocks and legs now! When I had really bad shoulder and neck pain I really worked on my posture. I hadn’t realised that my shoulders went up to my ears! I also did stretches every day and I think this did eventually help. Everyone is different but I do hope that you find something to ease the relentless pain. Take care. Xx

mcglada0 profile image
mcglada0 in reply to mcglada0

Odin should have been pain

Doodleangel profile image
Doodleangel

You could be my twin, I feel exactly the same. Seem to live in bed these days, then I get down because I just feel Life is passing by and there is nothing I can do about it. Perhaps we should ask for a day of normality for Christmas, now that would be a present worth having x

Mimma profile image
Mimma

I suffered the same and found that Qi Gong exercises that you can find on you tube are really helpful. Just google Qi Gong 7 minutes of magic - follow the routine and hope it helps you too.

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