Very tender neck pain

[Daisyyellow]

Hi everyone, I’m still in the process of being diagnosed with Lupus but my consultant is thinking it definitely is some sort of connective tissue problem. This week my joints have flared up a bit but I’m experiencing a severe tender patch on the side of my neck - base of skull. It’s incredibly painful. I’m on low dose aspirin as I’ve just found out I’ve got Antiphospholipid antibodies so I can’t take ibuprofen at the moment. The pain is very very tender to touch and radiating into my jaw and head. Is this something anyone else has experienced at all?Normally, my pain is in hands and feet not neck.

Many thanks

[whatsit]

Hi I get this it lasts for a couple of weeks then subsides but always aware it’s there in my shoulders , xx

[Jodziebear]

Hi. Sorry you are experiencing this.

Have you tried applying heat? I have had painful muscles in my neck during a lupus flare which would radiate down to my shoulders and i found applying head pads really helped. I also have one of those travel cushions for when i have any neck pain, just to get a bit comfier and feel a bit supported. I usually take cocodamol or get codeine from the doctor for this type of pain as nothing else seems to help mine. Sorry I dont have any advice for the jaw, i have had this as well and other than pain killers there wasn't much else i could do.

Keep us updated with your diagnosis, i know it can be stressful and feel like it takes forever to get some answers.

Take care 🙂

[JEM23]

Hi, like you I have always got shoulder problems but have recently had awful stiffness and pain in my neck. I tried physio but nothing helped and in the end I had acupuncture which did the job. I think with Lupus you just have to give everything a go, including the heat pads (which are great). On Friday I had a steroid injection into my shoulder which I know will only give me short term relief but as I say, you just need to try everything. Good luck and don’t give up x

[Hidden]

Hi I’ve had this extremely painful in the past and nothing touched it . GP prescribed Gabapentin for nerve pain but didn’t help.

I have it again now - started 2 days ago same as you , base of skull left side, into neck and scapula.

Some mentioned acupuncture- I’m intrigued with trying this.

Hope you get some resolve it’s awful xx

[MorIlse in reply to Hidden]

I highly recommend acupuncture. At least 4 visits.

I have collapsed neck and only with X-rays can

Be seen. Do your fingers go numb at night?

[Hidden in reply to MorIlse]

Hi thank you I’ll look into it.

When it was very bad they did, I had MRI but nothing seen.

Xx

[MorIlse in reply to Hidden]

It could be a pinched nerve in your neck

[Hidden in reply to MorIlse]

I had all tests scans for this and wasn’t

[Daisyyellow in reply to MorIlse]

I wake up constantly with pins and needles in hands - could this be related

[MorIlse in reply to Daisyyellow]

It could be, have you had X-rays of your neck?