lupus

[Mandypandy1969]

don't know if I have lupus or not. hydroxy has made me feel worse since I have been taking it. spoken to rheumy nurse today and she has advised me to stop hydroxy and go back to g.p. I was diagnosed with lupus in April. this medication has made me so much worse and the symptoms sound more like fybromialgia to me after researching the internet. both are similar but treated differently so maybe I could be right and being treated for the wrong thing. I have got a brick wall. I have no faith in g.p.s whatsoever. I have to ring nurse back on Monday to see if coming off hydroxy has made me feel any better. feeling really fed up and have one hell of a migraine. sorry to rant on. I am so frustrated and feeling worse everyday. getting low.

[Margas]

I feel it has nothing to do with hydroxicloroquine. It's your immune system, lupus and maybe other overlaping AI. Wevhave ups and downs. I for one walked this two days ago after 3 months of rest, yesterday did the same for 30 minutes and at night all my lupus attacked me. Stiffness, feel so heavy on arms, legs and lower back. Even my face and eyes are different.

Calm down and rest. You should be patient, take time with things and people that do you good and care about what you eat. A healthy diet has helped me. As well as probiotics and gluten/dairy free. Together with medication. Our body needs time to heal.

Cheers!