LUPUS UK
21,892 members17,329 posts

So many questions

I’m still in early stages of a diagnosis, My consultant called me this morning the x-rays on my knees have flagged up something so I’m being sent for an MRI. Most of my bloods were ok but my ENA test was positive but but inflammation markers were ok ?? It’s not making much sense, im not due

to see my consultant till Jan. I’m also experiencing palpitations but I don’t know if this is linked to me currently being anemic 🤔

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Hi Louclou,

Welcome to the LUPUS UK HealthUnlocked Community!

We offer a free information pack that contains factsheets, guides, a list of helplines and a list of LUPUS UK contacts who you can chat with over the telephone. These contacts are volunteers who mostly have lupus themselves; they are not medically trained but are there to offer support and understanding. To download or request the pack please click here: lupusuk.org.uk/request-info...

We are not medically trained therefore we cannot state what your blood test results indicate. Although you have been diagnosed with lupus, you may wish to read our blog article on ‘getting a diagnosis of lupus’ as this may provide you with some clarity on specific ‘diagnostic’ features of lupus: lupusuk.org.uk/getting-diag...

Are you able to speak to your GP about the palpitations you are experiencing?

We published a factsheet on ‘LUPUS: The Heart and Lungs’ which you may like to read here: lupusuk.org.uk/wp-content/u...

Please keep us updated, wishing you all the best.

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Thanks so much, it’s all very daunting, I’m going to the doctors tonight I don’t know if it’s anxiety or something else that’s causing the palpitations. Hopefully I’ll get some answers.

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Keep us posted.

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I’m being given a ecg machine for 24 hours so we’ll see what results that shows 😊

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It's good to go through all of the tests just for peace of mind. It took me a while to get used to the palpitations. I get them from time to time now.

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I had an MRI on Friday on my left knee as the X-ray showed something...the consultant called me today stating I’m being referred to the orthopaedic team as a lesion/something on the bone has been spotted. To say I’m scared is an understatement...has anyone else experienced this 😢

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