Pregablin

[suzannejayne]

Hi, I have been taking pregablin for around 4 months now and although my GP keeps upping my dose I haven't had any benefit from it at all. Before that I was on gabapentin and that didn't help either so I was weened off them. I don't understand why its not helping with the pain and wondered if anyone felt the same? TIA x

[MandieR]

I am the same as you. I have a number of issues that cause me intense pain but NOTHING helps at all. Years ago I was given tramadol which worked like a dream for a while but then the dose had to keep being increased until I got worried abiut the amount I had to take so weaned myself off and ince then NOT ONE pain killer works for me

[suzannejayne in reply to MandieR]

Hi Mandie, I was also on Tramadol and weaned myself off it last year as it stopped having effect. I think we are similar in that nothing works with pain except co-codamol (at the moment anyway) lol My body gets too used to meds so they have a short shelf life x

[MandieR in reply to suzannejayne]

Very true. Sadly I cant take co codamol it makes me sick and cnt have any anti inflammtories. I am ordering CBD oil this week as friends of mine who also have Lupus use it and say it really helps 🤞

[suzannejayne in reply to MandieR]

Thats a shame as I find it does help with me anyway. I bought some CBD oil but I didn't like the taste so I'm going to look into vaping

[PMRpro]

Gabapentin and pregabalin are used for "nerve pain" - if it isn't "nerve pain" it won't help.

There is also a problem that pain perception becomes "learned" - even if the pain is relieved in some way the brain doesn't register that. That doesn't mean it is "all in your mind" - it is the nerves expecting there to be pain signals.

Perhaps a referral to a pain specialist might help?

[suzannejayne in reply to PMRpro]

Thanks for your reply, I have a rheumatology appointment soon so I will bring it up with him x

[Lupiknits]

No point in taking anything that doesn't help, especially when you have to wean yourself off it. My year with a pain management service helped enormously with the " perception of pain" . Not once was it implied it was in my head, and I still need BuTrans patches, but it did help with managing pain. Fortunately my ⭐️GP is very understanding of pain and insists that it is necessary to control it for any quality of life.

[suzannejayne in reply to Lupiknits]

Those are my thoughts exactly, I'm also on the list for Pain Management, am glad that it has helped you x

[Sarahd1609 in reply to suzannejayne]

I’m doing pain management at the moment and it is so worth doing. The classes I have attended have changed my ways of thinking and I’m starting to put me 1st xx

[ange726]

Hi Suzannejayne. I have also gone round the merry go round of medication. I too had been on gabapentin and nothing then went onto pregabilan , I went up to 1800mg a day and felt nothing except a bad side effect of making me completely wired up! The only thing that took my pain away was pred which worked for 5 weeks then pain came back. Now I'm on on a high dose of tarpentadol as they are still trying to figure out how to treat me. I got this form my pain management clinic. This does work but have been told it's a horrible drug! I don't care right now as its giving me pain relief for the first time. I have lupus of the CNS with a high chord lesion on my spinal chord. Awaiting results from a lumbar puncture and sensory tests. You are not alone so hang in there. There are amazing people on here for support. There will be a pain relief out there for you but sadly it takes time to try a new drug , have it in your system for it to work, to then ween off to then try a new one. Keep on at the Dr. I went practically every other day. Sending healthy happy thoughts. Xx

[suzannejayne]

Hi ange726, thanks for your reply. I'm glad you have found some medication that helps you, I feel the same, if I find something that works I will take it regardless as nothing can compare to being in so much pain everyday. I have found this site very supportive although I've yet to be diagnosed its such a friendly place to ask questions and advice. p.s I am usually at my GP's at least once a week take care xx