Disappearing guidelines

[hebdengirl]

Hi

Can anyone advise where the guidelines for the treatment of lupus have gone which were previously on the BSR website . I was hoping to print them out to take to my appointment tomorrow but cant find them anymore

any help gratefully accepted!

[Barnclown]

🙋🏼 I tried to find them just now...did find the same link I used last time I found these guidelines on the BSR website, but clicking on this link took me to an "error" message which says the doc is not available...I like to imagine this is because the BSR is revising the guidelines (or something) so they'll be back soon...but who knows...🤷🏼‍♀️ maybe the BSR has decided the public doesn't have a right to access...if so: GRRRR....will continue to search & get back to you if I find it!

🍀🍀🍀🍀 coco

[hebdengirl in reply to Barnclown]

Hi

Thanks for your response. Wonder why they would revise them..they were only released recently and should be available to all as all their other guidelines are. V strange.

🙁

[Barnclown in reply to hebdengirl]

Yes, agreed...I think the last revision was 2015....am trying to give the BSR the benefit of any doubt 😉 but I just visited the BSR website...seems to me it's been redesigned since I was there last year (when I first found their SLE care guidelines doc). The website now gives me an impression that you need to join the BSR in order to view guidelines...and only primary, secondary, tertiary medics can join. But maybe I'm wrong...

🙁 Is right

[Paul_Howard Partner LUPUS UK]

Hi hebdengirl ,

I believe they were taken down from their website because they hadn't officially been published yet and were made publicly available by accident. They were most recently reviewed towards the end of 2016. Hopefully they will be published soon.

[Nikkiemorgan]

Arthritis UK have a PDF review of current management of SLE. I wonder if that will be helpful to you?

arthritisresearchuk.org/~/m...

😀

[hebdengirl]

That's great...thank you. This forum is a mine of useful information x