Multi illnesses

First 32 years ago I was diagnosed as having M.E. myasthmia gravis, arthiritis, ibc. Have now been diagnosed 11 years ago with Lupus. Also about a year ago I was told my diaphragm is only working on one side. Have now been diagnosed with UCTD. Any help would be welcome. I was told 32 years ago if I gave up I would be in a wheelchair in 6 months, but have not I rule the illness not the other way round.

5 Replies

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  • Welcome to the forum. You will find a lot of support and friendship here. The way you say you rule the illness, not the other way around, is very inspiring. Thank you.

  • Welcome to this lovely community Alija1001. I have primary Sjogren's and Hashimoto's with Raynauds and small fibre neuropathy and some autonomic dysfunction. I was previously misdiagnosed with RA. I also have many allergies so lots of severe reactions to medications over the years and a long history of eczema and alopecia. I have found this Lupus UK community invaluable and it has helped me manage my health problems more effectively. I'm not sure I rule them yet - but I'm getting there!

  • Hi Alija1001,

    Welcome to the LUPUS UK HealthUnlocked Community.

    Your positive attitude is great to hear!

    The Lupus Encyclopaedia states that “UCTD is a common diagnosis for patients of rheumatologists. If diagnosed with UCTD, you are not alone; 10% to 20% of all referrals to major medical centre rheumatologists initially have an undifferentiated connective tissue disease”.

    We offer a free information pack which contains factsheets, guides, a list of helplines and a list of LUPUS UK contacts that you can speak to over the telephone. To download or request this pack, please click here: lupusuk.org.uk/request-info...

  • Hi allies

    Welcome to the forum and the UCTD club!. There are lots of members of it on here, myself included so hope you enjoy posting and sharing.

    You've been thru the mill diagnosis wise but fab you are still so positive!. Funnily enough when I was first diagnosed with UCTD 31 years ago my GP said I'd be in a wheelchair in 10 years and despite lots of changes i' m still on my feet and feel very proud I am so hope you do too as its such an achievement!.

    What treatments are you on, hope they're helping. Keep sharing . X

  • It takes great strength to do this but it is worth it.

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