Good morning my wonderful friends,
Sorry been very quiet lately but I'm - to be blunt - knackered 😑 Still up and down the M6 to see MIL and I'm so tired that I can't think straight. I can just about manage to shove some slap on - usually whilst B is driving - so I can play the ' I'm fine' game.
I've been keeping up with your posts - so much has been happening! Good and bad...Twitchy feeling so poorly, so unlike her. She's amazing and has wonderful advice, I'll just send her my love and hope that she's soon on the mend 😘 Wendy! What a fabulous outcome. You're my inspiration chick. I've read your letter and I could cry tears of joy - which does sound rather odd considering you've just been diagnosed with SLE! But you know what I mean 😆 onwards and upwards my friend, so proud of you 😘
Well...as I out in the posts title, I have my second opinion next week - next Thursday at 3:30 at the London Lupus Centre - not sure if I'm allowed to say with whom the appt is. I am now pooping myself as this really is last chance saloon! I know I'm being daft but after 10 years of misdiagnosis or being told it's all in your head, it's kind of scary.
I love this forum - it has been a God send to me. I'm still fighting not only for me but for the countless others who will be told to bu***r off, there's nothing wrong with you. Still scared though😂
With love and thanks,