I have MCTD, diagnosed in 2011. About three years ago, I started getting pain at the end of my thumb. It felt like I had a splinter. After me poking and prodding at it trying to find the splinter, it hit all flaky, top layers of skin peeled off then the pain stopped. This started happening every three or four months, getting progressively worse.
Now I have a distinct course of events. First the feeling of a splinter, with a lumpiness I can feel and it's become increasingly painful. Then the skin goes hard and several layers peel off leaving the end of my thumb incredibly sensitive. If I'm unlucky it will then split and has been infected needing antibiotics. Then the healing process and it's ok till the next time. At its worst it takes two weeks from start to finish and there is usually a gap of around 6-8 weeks before it starts again. It seems to be worse if I'm in a flare up of my disease.
This photo was from last September when it was bad, just before it split and got infected. I asked my Rheumy about it but he was fairly dismissive, saying it was "the least of my problems" He was more interested in discussing with the registrar my suitability for a drug trial!
As MCTD is a mix of lupus, myosotis and scleroderma, I was wondering if it was something to do with that?
It's more of an annoyance than anything else, but it is getting worse each time and if it starts in other fingers I can imagine it causing quite a lot of misery for me. I'd appreciate if anyone can throw some light on, something for me to take back to my next clinic appointment! TIA x