Exceptional Video on Lupus

[riannabri]

Love this Video, its long but so informative

youtube.com/watch?v=tT1kSzE...(Not working as expected?)

[EOLHPC]

Many thanks! Excellent video! 🌟🌟🌟🌟 So glad you've posted this! The details is fantastic. As an aside: the bluntly objective way he comments on patients as vehicles of disease confirms my sense that of course, yes, some medics for sure consider us objects...especially when discussing us amongst the themselves. One useful thing about this video is that it's a presentation to medical students.

The sorts of things that irritated me were stuff like his repeated emphatic insistence that lupus-related oral mucosal ulcers are NEVER painful. Johns Hopkins Press's wonderful The Lupus Encyclopedia says these ulcers "are usually painless, but occasionally can be painful." Mine certainly are painful (and as a tennager I suffered from a ghastly flare involving mucositis...described perfectly in the Lupus Encyclopedia...boy were those oral ulcers painful!)

The content of this video overlaps beautifully with the article link I posted the other day here:

healthunlocked.com/lupusuk/...

🍀🍀🍀🍀 coco

[PMRpro in reply to EOLHPC]

Wonder if Paul would pin them so they are easy to find?

[Natura]

Wow. Thank you for sharing

[Hidden]

Thankyou for this. Very interesting. Ive sat in many similar lectures where the pure clinical elements of disease are relayed to ensure the correct diagnosis or treatment is given in the future. I think these young medics must be so confused by the autoimmune world. They want it to be cut and dried it isn't. Hopefully to pick up Barnclowns point, by the time they are actually infront of a sufferer, the disease becomes a person, a life that has changed.

[PMRpro in reply to Hidden]

It is amazing the difference it makes to have a doctor who has personal experience of autoimmune illness or a family member with one. They are far less dismissive of the pain and disability.