I have been diagnosed (based on skin biopsy) with Cutaneous (Skin) Lupus since April 2016. For past 4 monthsI have been on 2x200 hydroxychloroquine.
I have had huge flare ups in the past 4 months. I had a course of tapering prednisolene in April (6 days), in May (6 days) along with hydroxy throughout. In June July I had huge flare ups again, but did not want to take prednislene, hence the flare ups were unabated and miserable to live.lare up on neck, face, elbows, shin, chest etc
In August currently, I am taking 35 mg predni along with 2x200 hydroxy. I will be tapering this to 25 mg afetr a week. The flares have come down but itching is not fully eliminated and skin eruptions can still be seen.
I dont have SLE. Rheumy has referred me back to Dermatology. When should I ask the Dermatologist to start me on either Methotrexate or Myclophenolate or Azathioprine??? and how much. I am dreading that the flares will return if I stopped or reduced the steroids. Hydroxy over the past 4 months appears not to be defective. Hydroxy has also caused lip dryness which is burning the top of lips.
Thanks for all the help.