Me and Mr. Lupus

[genarsimmons]

Hey. My first post. I have Lupus SLE. Right now it's affecting my skin and thyroid. This has robbed me of my prior life and I don't like it. I've got to learn some managing skills or I will spiral into depression. I have a type A personality so me and Mr. Lupus have had our battles. I have about 4-5 productive hours a day. How can I increase that?

[diane1428]

What meds r u on

Regards Diane

[Barnclown]

Many thanks for this gorgeous smiling photo, gena 🌟🌟🌟🌟 Welcome!

I'm with diane: what meds r u on?

the right treatment plan + the right lifestyle management could well increase those figures...if not on a daily basis, at least for several days a week.

My combined therapy relatively low dose daily lupus meds have boosted my resilience, stamina & mental focus greatly....and fairly strict rationing + pacing of activites & pressures have too (good nightime sleep + daytime 'horizontals' (aka naps or meditation breaks) are key to this). I took early retirement and set up a consultancy so I could work from home...zero commuting increased my daily productivity a lot 😉

Here's a link to some good Lupus UK info on this: lupusuk.org.uk/managing-fat...

🍀🍀🍀🍀 coco

[johare]

Can't agree more with what's already been said. Pacing important, acceptance but not giving in. I think at first we may all be guilty of over doing the good days and then paying for it with some many bars days. Use meds well once you understand your own condition and adapt your day into pieces if you can. Change activity between physical and mental and rest. Lovely photo by the way.

[minka]

All I can say myself whent into remission 3 times but I found in the early stages u have got to exercise it likes exercise if u can do it Bengal walks stretching exercises these all help eat well and always have fruit and nuts are good rest when u need to rest be wary of a drug called predistone high doses read info on net first make sure u tale bone supplements please try people on here to help u through the hard times

[Tiras]

👣👣👣👣👣👣👣👣👣👣👣👣👣

I know how you feel but, lupus has changed my life, I still do everything and go everywhere. I just have to to it differently now. I have had rashes/blister on my right foot for 2 years. So for the last 2 years I have had to go barefoot ( I live in the southeastern part of the U.S. so it's really not an issue). I have my mottos and I live by them.

👣I will not let lupus control my life👣

And

👣LIVE LIFE TO IT'S FULLEST👣

You should do the same!

👣👣👣👣👣Tiras👣👣👣👣👣