Thank you one and all, Mandy. Xx

I wanted to thank everyone who responded to my question about some strange night time experiences, it really was much appriciated.

My local gp was great as usual and has decided that I need to be referred to the neurology consultant... fun. Having had one lupus phycosis episode 2 years ago, he is concerned for the few brain cells I have left......lol, and yes, thats how our conversations go.....

Bloods etc also taken, heart 100 to 130 bpm most of time and costro just so painful, I really would like a lining transplant......😂😃😄

Anyway, compulsive rest for at least a week....yippeeeeee! there goes my skydiving plans...oh and the weight i lost will go straight back to my hips....again...

So in the meantime, I made this to go with the Cornish pin. As my aunt, the one getting married, is a Cornish Bard, it contains two special places, written in Cornish and English.

Quite pleased with it......sorry to be so proud but every goal I set and actually complete, gets ticked off my bucket list.......so one more done, now I can add another one.....

Again my thanks one and all.

May the universe grant you the strength to see this night through.

Much love, Mandy. X

13 Replies

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littleeffie

2 years ago

That Mandy is a beautiful and clever piece of work.

The photos make me remember some wonderful coastal childhood memories .😊

You should be very proud to share this with us.

Really pleased you did see Gp about your funny? or rather very unfunny experience which had me worried.Hope the referral comes up with an answer and something to prevent return of symptoms.

I get really hideous costochondritis too so know That feeling which can't be understood until you've felt it yourself.OUCH! And more Ouch!😢

Well skydiving this week would be a bit wet and watery anyway😉 don't you think.

If my sewing machine will stop fighting over the tension between us and let me continue my bike seat cover,working one handed is rather challenging, I will post a pic.

Take care of you and give in to the rest.

Hugs n stuff x

Shadows-walker

in reply to amandalilley

LOL no I have an open invite to a friends in Luxulan , she bought the old vicarage there and I just have to get there it's a 5 hour drive from me I think 😖 I used to go to the beach every Sunday with Abigail with my kites and loose myself and re charge and be ready for the coming week . It used to take me 1hour 10 mins took others 1.30 /1.40 mins from where I lived never thought about fuel cost etc just went .

What is your giant cyborg by the way 🤔😳 ?

Had social services here finally today going to have a re hab team in for 6 weeks to try and help me , look after me a bit more , then see about possible help after Abbi goes back to uni , they were shocked I applied for an assessment last August and that Abbi had taken year out of degree because I needed the help . And it turned out I new her from my dog walking days , so she new how fit I was again it all helps and can't remember if I told you but my manuel wheelchair comes next Wednesday so Abbi can help me go to supermarket from house and not take the car 😀 , new glasses came in today so I am getting them tomorrow 😊

Enjoy the wedding ,

Gentle hugs s always

Chris xx

SjogiBear

That's lovely Mandy - you are very talented and I am sure the happy couple will love it.

Thanks for letting us know the update after seeing your GP - it sounds like he's on the ball anyway which is encouraging. Let's hope it's just yet another of those 'lupus things'.

I get weird costo type pains too - it feels like the rubber bands holding my body together have perished - that's the best way I can explain it. Some of my joints just seem to be falling away from the body - the joints themselves are relatively OK. My doc probably just thinks I'm weird when I try and describe this but I suppose we do have a connective tissue disorder and I just reckon that those connective tissues are giving up and that's why we feel like we're falling apart at the seams.

Take care!

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