Im new ... On my way to Rheumy for first time

Hi, I am getting checked out for Lupus at the moment.  Preparing for first Rheumatologist appt and would welcome any tips.

I have a history of allergies and food intolerances, migraines, gut issues (coeliac), lichen sclerosus and mood disorder.  In recent times I've developed severe fatigue, joint pain in hands and feet (worse on waking - can't use my hands), mild fevers, lymph nodes up, generally unwell and other niggling things like UTIs.  

My ANA is 1:640 and CRP is positive.  

What should I be doing to prepare for my first rheumatologist appointment?  Any tips?

4 Replies

  • Sit down quietly and make a list.  Go back as far as you can and give your Rheumy your list.  Otherwise you might forget some important factors.

    It helped me

    Best of luck Diane 

  • Hi Virginia

    Good luck for your Rheumy Appt. I  just want to add if you have any photos of rashes include them and let us know how you get on. X

  • Hello virginia

    This is a link to a popular recent post & discussion on this forum about how to prep for appts....could be helpful to you, I read the later replies, because further useful appt prep links are included there

    Wishing you all the v best for your glad you're here...hope you'll let us know how you get on

    🍀🍀🍀🍀 coco

  • Thanks for the link.  Helpful!

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