Im new ... On my way to Rheumy for first time - LUPUS UK

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Im new ... On my way to Rheumy for first time

Virginia70 profile image
4 Replies

Hi, I am getting checked out for Lupus at the moment.  Preparing for first Rheumatologist appt and would welcome any tips.

I have a history of allergies and food intolerances, migraines, gut issues (coeliac), lichen sclerosus and mood disorder.  In recent times I've developed severe fatigue, joint pain in hands and feet (worse on waking - can't use my hands), mild fevers, lymph nodes up, generally unwell and other niggling things like UTIs.  

My ANA is 1:640 and CRP is positive.  

What should I be doing to prepare for my first rheumatologist appointment?  Any tips?

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Virginia70
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4 Replies
diane1428 profile image
diane1428

Sit down quietly and make a list.  Go back as far as you can and give your Rheumy your list.  Otherwise you might forget some important factors.

It helped me

Best of luck Diane 

misty14 profile image
misty14

Hi Virginia

Good luck for your Rheumy Appt. I  just want to add if you have any photos of rashes include them and let us know how you get on. X

Barnclown profile image
Barnclown

Hello virginia

This is a link to a popular recent post & discussion on this forum about how to prep for appts....could be helpful to you, I hope...do read the later replies, because further useful appt prep links are included there

healthunlocked.com/lupusuk/...

Wishing you all the v best for your appt....am glad you're here...hope you'll let us know how you get on

🍀🍀🍀🍀 coco

Virginia70 profile image
Virginia70 in reply to Barnclown

Thanks for the link.  Helpful!

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