Ramipril

[maybehope]

Another Med to add to the growing list. Does anyone else take Ramipril to ease the Kidneys when protein is found. Taking prednisolone, Hydroxychloroquine,Thyroxine and HRT

[Ruth_lderry]

Hi I took this 4 a while I then got this awful cough with it not just any cough one that took over my life ! Was that bad I cracked a rib and all.. Keep eye out4 this as a side effect xx

[maybehope in reply to Ruth_lderry]

Thank you Ruth. I am new to all of this and when reading the side effects for each medication it make you question whether you are doing to right thing taking them!!!!! I hate taking tablets at the best of times and having to "try" all of these in "trail and error" makes me feel really vulnerable.

[Ruth_lderry in reply to maybehope]

I don't even look at the side effects anymore looking at these would put u off even starting the new meds.. I only look now at the do's and don't as I have kidneys problems so that's the only thing I rule out before starting a new med. R u starting ramipil due to kidney problems with ur lupus?

ruth

[maybehope in reply to Ruth_lderry]

Yes Ruth. Was diagnosed in October but have had SLE for a long time before.

[Ruth_lderry in reply to maybehope]

I was given ramipil to for the same reason. I couldn't not stick it at all. couldn't talk with coughing or even sleep once I said to my renual doctor he knew right away what was causing it. that's the only downfall I have had with my kidney treatment thankfully it was minor compared to where I had been. I really hope all goes aswell with your treatment aswell.

ruth x

[chrisj]

I was on ramapril until recently, been taking it for a few years. Then in september last year I had a urine infection that turned out to be e coli, I was very poorly

On my gps 4th call out he finally took some bloods that showed a problem with my kidneys and the next day I was admitted to hospital. The first thing the consultant did was stop the ramapril, I havent taken it since

I saw a renal consultant yesterday who told me my kidney function is low. It seems ramapril is useful when your kidneys are working reasonably well, but when they arent it has an adverse effect and makes things worse. Thats all I can tell you and from what your post says its a different problem to the one you have

[maybehope in reply to chrisj]

Thank you for your reply Chris. Trying to get my Lupus under control at the moment but will keep a close eye on my kidney symptoms.

[Ruth_lderry in reply to chrisj]

hi chris yes I was given this drug as my kidneys were still working normally.

Ramapril did not agree with me one bit. but thankfully everything has stayed the same for me since I was diagnosed. My kidneys are on the mend but a very close eye is kept on me.

Hope all stays well with u.

Ruth

[chrisj]

Thank you Ruth xx

[Roanna]

Hey maybehope, I too was on Ramipril for 6 months but the cough drove me crazy, from there they put me on Micardis, which worked well and brought my blood pressure down pretty low but stable. I could always tell when a kidney flare was starting as my blood pressure would go up and the bubbles in the urine was like dish soap although there are no other kidney symptoms I'm aware of other than in the urine tests. They do have many blood pressure pills you can try if Ramipril doesn't work well for you. Sometimes generic brands give you side effects that the name brand didn't. I've tried 4 in the last 8 months due to one side effect I couldn't deal with, achy legs and hips. The blood pressure pills take off a lot of stress on your kidneys. Diet is a big factor so make sure you see a good nutritionalists as well. good luck

[maybehope in reply to Roanna]

Hi. Thank you Roanna. My blood pressure is really good and always has been which is why I was nervous about starting Ramipril. It is to protect my Kidneys as I have SLE and showing protein all the time in my samples. Thanks for the info as I feel much more confident hearing other peoples experiences.

[Roanna in reply to maybehope]

My blood pressure was good when I first started BBP 25 years ago also. Lets hope your protein count improves as well or stays stable. Mine didn't and after a kidney biopsy and 6 Cyclophosphomide iv treatments, it improved to a 1.75% in my urine which was maintainable with BBP pills, Cloroquine and imuran. I even was able to get off the BPP for a few years and maintained a small amount of protein in my tests which will always be there from what I've been told. It works but with lupus every thing takes time to be effective. For the most part my lupus changed over the years from joint pain to being mainly Nephritis so other than the odd joint flare, over the years I think I've been pretty lucky. And believe me no one likes to take pills if they don't have to. You will do well, just follow your doctors orders and stay positive and keep pushing yourself. I think that is the only thing that kept me going. I worked full-time since I was diagnosed in 1984 and there are days where I am tired and need to rest a bit longer than others but you know your body and what you can get away with. Your on the right site for questions as some of these girls have great advice for anything you may come up with and are so supportive, I wish I had this site when I got diagnosed 30 yrs ago. good luck