LUPUS UK
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Feel This Pain: Ehlers-Danlos

Much more than just a "stretchy skin" disease, Ehlers-Danlos is a very painful syndrome with very real consequences for those who have it.

#EhlersDanlos #dontpunishpain #GivePainAVoice

Image Credits:

"Ehlers-Danlos syndrome4" by Piotr Dołżonek - see below. Licensed under GFDL via Wikimedia Commons - commons.wikimedia.org/wiki/...

Veronica Foale Follow

"Ankle Subluxation"

flickr.com/photos/sleepless...

Mayo Clinic Information:

mayoclinic.org/diseases-con...

4 Replies
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He is scarily over dramatic. Yes it's serious but after watching that you could think your life was over. Certainly not one to show the kids, who like me have EDS!

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My son was being tested for EDS along with other disorders (I have lupus and sjogrens) and it turns out he has joint hypermobility. Which sounds like it should be a good thing right? But no...constant knee pain from overextending, having to give up sport, missed schooling. So pain is very dramatic to those that suffer it.

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I am sorry, I did not mean to offend. My children have had many complications including surgery and chronic pain. It's the way he puts it across. We have to be positive!

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Is there any help in the south east for dentistry as i have eds and lupus

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