Feel This Pain: Ehlers-Danlos: Much more than just... - LUPUS UK

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Feel This Pain: Ehlers-Danlos

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Much more than just a "stretchy skin" disease, Ehlers-Danlos is a very painful syndrome with very real consequences for those who have it.

#EhlersDanlos #dontpunishpain #GivePainAVoice

youtu.be/TZRXlRd4Kgs

Image Credits:

"Ehlers-Danlos syndrome4" by Piotr Dołżonek - see below. Licensed under GFDL via Wikimedia Commons - commons.wikimedia.org/wiki/...

Veronica Foale Follow

"Ankle Subluxation"

flickr.com/photos/sleepless...

Mayo Clinic Information:

mayoclinic.org/diseases-con...

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4 Replies
Suzie profile image
Suzie

He is scarily over dramatic. Yes it's serious but after watching that you could think your life was over. Certainly not one to show the kids, who like me have EDS!

in reply to Suzie

My son was being tested for EDS along with other disorders (I have lupus and sjogrens) and it turns out he has joint hypermobility. Which sounds like it should be a good thing right? But no...constant knee pain from overextending, having to give up sport, missed schooling. So pain is very dramatic to those that suffer it.

Suzie profile image
Suzie in reply to

I am sorry, I did not mean to offend. My children have had many complications including surgery and chronic pain. It's the way he puts it across. We have to be positive!

Pamlupuszebra profile image
Pamlupuszebra

Is there any help in the south east for dentistry as i have eds and lupus

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